Understanding Experiences with Vaccination Before and After a Rare Neuroimmune Disorder

Principal Investigator: Sanford Siegel, PhD and Gabrielle deFiebre, MPH

The goal of the study is to understand and learn from SRNA member community about their experiences with receiving vaccinations before and after a rare neuroimmune disorder diagnosis, with a focus on their experiences after diagnosis. The study involves participation in a survey administered using Surveymonkey and through postal mail.

This study is being conducted in two parts. The first part is a random sample of 600 members of SRNA. Once the random sample has been recruited, we will open enrollment to all members of SRNA.