SRNA 2016 Quality of Life Camp

Our Annual Quality of Life Camp at The Center for Courageous Kids (CCK) was a huge success!  We are incredibly grateful to CCK and all of the families, medical professionals, volunteers and staff who participated and made camp an unforgettable experience!

30 families from across 17 states in the United States and from Canada, India and Australia joined us.

Here are some of our favorite moments from camp this year held from July 31-August 4, 2016!

“Before going to camp I had only met (in person) two other people with TM. It was so great to meet others with TM, and to see the children and families from across the country (and the world!) enjoying themselves during activities, learning and sharing their experiences at the education sessions, and interacting with each other and the health care providers. I also got to participate in some activities and even got to ride a horse!”
–GG deFiebre, SRNA Research and Data Manager

“Camp was a great experience! My favorite moments from the week were the times I was able to witness the campers participate in their daily activities such as horseback riding, archery or swimming. The joy each child got from being able to take part in something without having to feel “different” was contagious! Also, during camp I went fishing for the first time ever and caught a fish on my first try. Shout out to the CCK staff for being incredible counselors to our campers and for encouraging me to try something new.” –Timi Schrumpf, SRNA Community Partnerships Manager

Our annual Quality of Life Camp is made possible through the generous support of The Roles Family Foundation, our members and a host of volunteer workers. We simply would not exist without your continued support! Thank you!

Our “Send a Kid to Camp” fundraiser is the perfect way to support our cause and help a family get to our 2017 Annual Family Camp. Join us now! Your support really does help change lives!