Volunteer

Looking for a way to get more involved in a cause you care about? Become a volunteer with the Siegel Rare Neuroimmune Association! We are excited for you to show your passion to connect, care, and accelerate research for a cure for rare neuroimmune disorders. Below you can find some examples of how you can volunteer for SRNA.

Become a Support Group Leader

Sharing our experiences and learning together with others who truly understand what it is to live with a rare neuroimmune disease can be life-changing. By sharing our struggles, celebrations, and resources that have helped us along the way, we experience healing and comfort knowing we are not alone. Start a support group in your area or online to connect with others.

Support Group Leaders create an open space for listening and sharing with others who understand. Our team will help you by offering an online training program, an official SRNA email address, securing guest speakers when possible, creating event pages, email announcements, and more. Become a Support Group Leader today! Get started today by completing the Volunteer Application Form.

Click here to learn more about our Support Group Network.

Become a Peer Connect Leader

Share what you have learned along your journey by volunteering as a Peer Connect Leader. Peer Connect Leaders support individuals over the phone, by email, or over video to offer a listening ear, provide relevant resources, and share connection with someone who understands the realities of rare neuroimmune disorders. If you identify as an empathetic listener and enjoy discussing shared experiences, consider becoming a Peer Connect Leader. Click here to get started!

Click here to learn more about the Peer Connect Program.

Start a Walk in Your Area

Organize a Walk-Run-N-Roll to advocate and raise awareness about rare neuroimmune disorders. We need your leadership, enthusiasm, and support for our mission to improve the quality of life for individuals with rare neuroimmune disorders.

Since 2013 we’ve helped over 50 volunteers organize a Walk-Run-N-Roll event in their area. These fundraising events support our programming and research initiatives while raising awareness and offering our community a special opportunity to connect. Our team will help you throughout the process by providing tips for success, designing sponsor packets, postcards, webpages, email announcements, and more. If you have a background in event planning or have a desire to make a difference in the lives of those affected by rare neuroimmune disorders, click here to fill out an application today!

Learn everything about starting a Walk-Run-N-Roll in your city here!

Transcript Proofreader

Do you have a background in writing? Do you like to be organized? We are looking for volunteers to assist with proofreading podcast transcripts. Get involved and support our work as an administrative volunteer!

Impact

This volunteer opportunity benefits individuals and families affected by rare neuroimmune disorders such as acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM). Transcripts from SRNA’s educational programs such as our “Ask the Expert,” “ABCs of NMOSD,” and “ADEM Academy” series benefit thousands of caregivers and people who have received these diagnoses. Transcripts and closed captions in our video reach even more individuals by providing accessibility.

Time Commitment

The time commitment for this role involves approximately 10 hours each month, with an estimated proof-reading of 3-5 transcripts per month.

Eligibility

Thorough understanding of English grammar, punctuation, and spelling
Email address
Access to Microsoft Word
General knowledge of medical terminology is helpful, although not required for this role

Looking for a way to get more involved in a cause you care about? Become a volunteer  with the Siegel Rare Neuroimmune Association and showcase your passion to connect, care, and accelerate research for a cure for rare neuroimmune disorders!

Administrative Support

We offer several resources for our community, including blogs, an SRNA Magazine, podcasts, video recordings from past symposia, information fact sheets, and more. Do you have a background in writing? Do you speak multiple languages? Do you like to be organized? We are looking for volunteers to assist with transcription, translation, and editing. Get involved and support our work as an administrative volunteer!

Apply Today!

Volunteer Program Common Questions

What is the volunteer time commitment?

The commitment depends on which role you select. Certain roles require training, while others are short-term projects. Most opportunities require a 6-month minimum commitment. Make sure to check out our Volunteer Handbook for in-depth details about what it means to volunteer for SRNA.

What are the perks of volunteering?

Volunteers receive free registration to SRNA organized events such as the Rare Neuroimmune Disorders Symposium. Once certain time and/or project commitments are met, there is the opportunity to receive additional benefits in the form of SRNA-branded merchandise. The best benefit of all is the chance to be part of a group of fellow volunteers who are all passionate about SRNA and supporting our community!

What is the age requirement?

18 is our age minimum, but exceptions may be made for school projects or other opportunities.

How do I apply?

Please fill out the volunteer application form. Should your background, availability, and interest meet our needs, we will be in touch about an interview. All SRNA volunteers must successfully complete a background and reference check.

I have more questions

Please email us at [email protected]. We look forward to connecting with you!