Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal is to deliver medical breakthroughs where none currently exist, and they are committed to ensuring that patient perspective and community engagement is always at the forefront of their work.
2020 SRNA Virtual Family Camp has concluded!
Thank you to our families and volunteers who joined us, and our sponsors for a great weekend!
Stay tuned to our blog and subscribe to our email list for upcoming news regarding the 2021 SRNA Family Camp in the coming months!
COVID-19 update as of July 17, 2020:
Due to the COVID-19 pandemic, we and our camp partners, The Center for Courageous Kids (CCK), made the difficult decision to forgo all in-person events and bring our camp experience entirely online. While this is different and certainly doesn’t beat meeting in person, we hope this virtual camp experience will still be a welcome opportunity for you and your family! We encourage you to register and engage with one another and our medical professionals, and get a glimpse of the incredible fun CCK has to offer! For questions, additional information, or to be sure you’re on our email list regarding our Family Camp opportunity, please email [email protected]. For more information and resources relative to COVID-19, please visit our COVID-19 page.
SRNA is proud to offer a family camp for children diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, and TM, and their family members. The camp provides a chance for children with rare neuroimmune disorders and their family members to experience the joys of camp and connect with others who experience the same symptoms and conditions.
SRNA Family Camp is going online, Friday, July 24 through Saturday, July 26, 2020! Be sure to register using the link below!
View the 2020 SRNA Virtual Family Camp Agenda here!
HOW DO WE REGISTER?
Start by completing SRNA’s Family Camp registration here! We’ll follow-up with you next week with the appropriate links, access codes, and instructions you’ll need to join in on the camp sessions!
Please note!: We need you to use this form to register even if you previously applied to camp! If you didn’t already sign up for a camp application with CCK late last or early this year, now’s your chance to join!
Do you have questions about camp? Please email Rebecca Whitney, Pediatric Programs Manager, at [email protected], with any questions you may have regarding our program!
SPONSORS
Our 2019 Quality of Life Camp was made possible through the generous support of the Christopher & Dana Reeve Foundation Quality of Life Grant, The Roles Family Foundation, The Rachel Williams Foundation, our members and a host of volunteer workers.
2020 SRNA Quality of Life Family Camp sponsored in part by
