Who we are…
The Siegel Rare Neuroimmune Association (SRNA) is a not-for-profit international organization dedicated to the support of children, adolescents, and adults with a spectrum of rare neuroimmune disorders including: Acute Disseminated Encephalomyelitis (ADEM), Acute Flaccid Myelitis (AFM), MOG Antibody Disease (MOGAD), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM).
Founded in 1994 by family members and individuals with these diagnoses, SRNA (formerly the Transverse Myelitis association — read more about the change here) was incorporated on November 25, 1996 in the state of Washington and we became a 501(c)(3) organization on December 9, 1996.
Siegel Rare Neuroimmune Association
1787 Sutter Parkway
Powell, OH 43065-8806
+1 (855) 380-3330 (Eastern Standard Time)
Please send all communications and donations to our new bank lockbox address:
PO Box 826962
Philadelphia PA 19182-6962