Sharing our experiences and learning together with others who truly understand what it is to live with or care for another with a rare neuro-immune disease can be life-changing. By sharing our struggles and celebrations, learning at educational opportunities, exchanging resources or meeting at awareness events, we experience healing and comfort knowing we are not alone.
Click below to find a support group near you. If you are interested in joining a support group, please contact your closest support group leader. If you do not see a group near you and would like to help start one, please email us at firstname.lastname@example.org. Don’t forget to review our volunteer handbook!