The Siegel Rare Neuroimmune Association has created a patient registry. The purpose of this registry is to help advance research about rare neuroimmune disorders, collaborate with researchers from around the world and identify participants for clinical trials.
Many of our members have shared information about their diagnosis, treatment and outcomes over the years. The information you shared continues to help us guide our programs and research. THANK YOU!
SRNA registry has been designed to learn more about the natural history of rare neuroimmune disorders, treatments and outcomes using standardized tools.