2015: Our Year in Review

/in /by

Dear SRNA Family, 

2015 was another incredibly productive year. We offered many different programs and opportunities to accelerate education, research and awareness of rare neuroimmune disorders. We are entirely indebted and grateful for all that you, your families and friends have done to make this happen.


SRNA Board has made the James T. Lubin Fellowship a funding priority. Fellows are trained to provide clinical care to address both acute and long-term effects of these disorders. These rare neuroimmune disorders can affect anyone at any time. In the early stages, time is crucial and early recognition can make the difference in long term outcomes. Our first graduate, Dr. Allen DeSena, established his practice at the University of Cincinnati, and our second fellow, Dr. Michael Sweeney began his training at the University of Utah. Through the generosity of  The Madison Charitable Foundation, we are looking forward to funding not one, but two new Fellows in 2016.  Please join our ASAP Dollar-4-Dollar Challenge.

2015 ANNUAL UPDATE

People seek and find us at a most critical time in their lives. Receiving a diagnosis of acute disseminated encephalomyelitis, optic neuritis, neuromyelitis optica spectrum disorder or transverse myelitis begins a journey filled with tragedy, loss, pain and suffering. SRNA offers a pathway of  hope. We provide emotional support to those who feel isolated and alone in their experience with a rare disorder. We provide guidance to those seeking acute and long term medical care. We provide critical resources to the medical community, including medical training and research opportunities. With your help we can continue to raise awareness and train more clinicians in the diagnosis and treatment of these devastating disorders.

We appreciate all that you do for our cause and for your cause and look forward to your continued support.

Wishing you a Happy Thanksgiving,

Chitra & Sandy

Support research to understand more about rare neuroimmune disorders! Join SRNA’s ASAP Challenge, a matching fundraising campaign made possible through the generosity of The Madison Charitable Foundation. The ASAP Challenge supports the training of clinician-scientists.  You can make a difference by improving quality of patient care and accelerating critical research.