It all started with a headache that we assumed was from wrestling too hard. Like any three-and-a-half-year-old, Leland liked to play hard and be all boy. As the week wore on, we saw more and more things that didn’t add up. We made several trips to the doctor’s office, with no real reason for his symptoms that seemed to come and go. Intermittent loss of speech, balance, and true exhaustion.
It was Easter evening in 2013, when we made our first trip to the ER. He had barely been able to hunt for Easter eggs that morning before falling back to sleep. By the time we got to the ER, he was acting fine. After deciding that Leland looked OK at that point, we decided that we would do outpatient care the next day. We went home and put him to bed. The next morning, we woke to him screaming, unable to walk or even tell us what was wrong. We rushed him back to the ER, where the doctors decided that we needed more care. We then went by ambulance to Omaha’s Children’s Hospital. By the time we arrived he couldn’t speak or move.