Almost three years to the day, in March 2017, I started feeling like my face was asleep on the left side. It started on my chin and slowly worked its way up to my forehead. I’d later find out that the sensory issues were on the majority of the left side of my body. I was due for my annual MRI, so they added some additional images and found another lesion. During this time, I was diagnosed with MS, and I went to see an MS specialist who quickly changed my diagnosis to neuromyelitis optica spectrum disorder (NMOSD). She warned me not to Google it and gave me some information.
I started Rituxan in September of 2017. Since then, I have had an attack that caused some issues with my right leg, and I’ve experienced issues with fatigue and cognitive issues. I have some odd residual symptoms, but otherwise I am definitely lucky to be where I am today. Since I was diagnosed, I went to school and got my master’s degree. I probably drive all of my doctors crazy advocating for myself and making sure that I am getting the best care that I can. Due to that, my neurologist encouraged me to help with support groups and helping others in our community with NMOSD, so I became a SRNA Support Group Leader in 2019 for the San Antonio, TX area. Sometimes living with this disease is frustrating, but in the process, it has brought a lot of good into my life. I have met amazing people and I have learned to have a more positive outlook in life. I hope that I can bring that to others who are navigating life with NMOSD or similar diseases.