Time is of the essence when it comes to rare neuroimmune disorders and the time to get awareness out is now. I know this because my 2 ½ year old son has Acute Flaccid Myelitis (AFM) which is a subtype of Transverse Myelitis.
Little did I know the clock was ticking on the morning of October 3, 2014. That morning felt like any other morning. I got up and got my baby out of his crib and nursed him. After feeding him I went to sit him up on the bed and he fell backwards. I did it again and back he went. I looked him over and he wasn’t moving from the waist down. We proceeded to our nearest emergency room where we were immediately transferred to Boston Children’s Hospital.