A few years ago, our lives changed drastically again, for the better, when she was taken on for treatment at Shriners Hospital in Portland, OR. They provided her with excellent care and this past September, she underwent a major reconstruction surgery on her legs and left foot, because her bones were growing improperly after her initial onset. Her tibias were rotated, one 20 degrees, the other 40 degrees. Her left hamstrings were lengthened and her foot was reconstructed, complete with cadaver donor bone. The months leading up to the surgery were terrifying and filled with dread for what was to come but she of course, bounced back with her usual fighting spirit. She was back at school exactly one month after her surgery, less than half the time that was expected and she is once again re-learning to walk with the aid of a walker and her AFO’s.