When I picked Rilynn up, I immediately knew something was wrong. She screamed in pain as I buckled her into her car seat. I called my husband, Danny, from the car in tears, telling him we needed to get Rilynn to the hospital. We took her to our local hospital in rural Salida, Colorado, where blood tests, CAT scans, X-rays and urinalysis were performed before they sent us home, telling us that she was just lethargic from not feeling well. In reality, we were walking out the door with a daughter that was paralyzed from the neck down. When she could no longer lift her head to nurse, we loaded her up in the car and drove her to Children’s Hospital in Colorado Springs. It was there that we first heard the words, Transverse Myelitis.
With the diagnosis brought progress. We began the first rounds of steroids and IVIG treatments. With the help of Sandy Siegel and SRNA, we were transferred to Children’s Hospital in Denver to begin five plasmapheresis treatments and entered their inpatient rehabilitation program. Rilynn slowly began to regain movement, first in her arms and hands and then very slowly in her legs. We left the hospital on May 17, 2013 with an 11-month old daughter who was just relearning how to sit up and roll from her back to her stomach.