The 2017 Rare Neuroimmune Disorders Symposium was held on October 20th-21st in Columbus, OH at the Hilton Columbus at Easton. We hope that the opportunity to meet the medical professionals, to connect with others in our community and learn more about TM, AFM, ADEM, ON, and NMOSD was a beneficial experience for those who attended. For those who couldn’t join us in person, symposium sessions were recorded and are available on SRNA’s YouTube Page and our Resource Library.
We strive to continue hosting educational events like these in order to fulfill SRNA mission of promoting awareness and empowering patients, families, clinicians and scientists through education programs and publications.
“The word rare doesn’t really apply in this room because for you it’s not rare, it’s real.” Dr. Brenda Banwell started the symposium with an overview about rare neuroimmune disorders.
Then there were disorder workshop sessions on Transverse Myelitis, Neuromyelitis Optica Spectrum Disorder and Optic Neuritis, Acute Disseminated Encephalomyelitis, and Acute Flaccid Myelitis. Speakers also gave talks on neuropathic pain, fatigue, bladder, bowel, and sexual dysfunction, neuropsychological issues, and rehabilitation.
We ended the 2017 RNDS with an afternoon on research updates where scientists and researchers shared exciting and promising information about the diagnosis, management, and treatment of these disorders. Below, you can find the video of Dr. Michael Levy’s talk on the Genetics of Familial Transverse Myelitis and his ongoing research to uncover a genetic link to TM. You can find all of the research talks on the 2017 RNDS page in our resource library.
If you would like to get involved, use your voice to connect with others and foster strong relationships in our community, or start a support group near you, please reach out to our Community Partnerships Manager, Jeremy Bennett at [email protected] to learn more.
We look forward to seeing more of our community next year at a regional symposium we are planning. Please check our website for more details in 2018.
Our work is made possible through the generous donations of individuals who believe in our mission. By choosing to donate to The Siegel Rare Neuroimmune Association today, you are taking an active role in efforts to help advance research, education and awareness of rare neuroimmune disorders.