Sharing our experiences and learning together with others who truly understand what it is to live with or care for another with a rare neuro-immune disease can be life-changing. By sharing our struggles and celebrations, learning at educational opportunities, exchanging resources or meeting at awareness events, we experience healing and comfort knowing we are not alone. Start a support group in your area to connect with others. Our own voices are powerful but just imagine what can be done when we come together as one!
To become a Support Group Leader please review our Volunteer Handbook, fill out the Support Group Leader form, the Volunteer Application Form and the Volunteer Code of Conduct and Commitment Form.