Our community has been particularly vulnerable to the impact of COVID-19 and its multiple manifestations. At the beginning of the pandemic, we understood so little about the virus and its consequences. It took time before even the most reliable sources of information had meaningful news to share. What everyone understood about the virus was made more complicated by unreliable resources prevalent on social media. It quickly became apparent to SRNA that, given the difficult issues faced by people with rare neuroimmune disorders, we needed to develop and disseminate reliable information to our community. Working with medical professionals and specialists, we created various sources of information, available on our website and updated regularly with the most recent and accurate information. There are numerous articles and links to the best information available all in one place. The video interview series with SRNA Board Member Dr. Benjamin Greenberg has been a critical resource.
The videos with Dr. Greenberg covered everything from what we understand about the virus and the variants, the symptoms from the disease, the treatments available, testing protocols and advice for people who contract the virus, guidance for people who are on long-term treatments for recurrent disease, and an abundance of direction about the vaccinations. Our medical specialists have done an exceptional job of reviewing the research, the different vaccination trials, and the process for obtaining FDA approval. SRNA has also presented valuable information about mitigation strategies, including masking and hygiene issues.
We are grateful for all our medical professionals who, like Dr. Greenberg, are contributing with their expertise and helping us provide valuable resources to our community, enabling them to continue to make well-informed decisions about COVID-19.