Virtual
2023RNDS
Saturday, November 11, 2023
A one-day virtual educational and advocacy event for those with acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM), as well as their families, care partners, and medical professionals.
Hosted by
Registration
Join us for a one-day regional conference!
Ticket fees: USD 5
* We are committed to making our educational programs accessible to everyone. If you can’t afford the registration fee, please contact us at [email protected].
About
The RNDS was created to bring together individuals diagnosed with rare neuroimmune disorders and clinicians and researchers that focus on these disorders. This event is the only one of its kind.
On November 11, 2023, we will host a virtual event.
We remain committed to hosting a conference that empowers our rare disease community to become better advocates for themselves and provides valuable resources to keep learning about these rare conditions.
Objectives
- Gather an understanding of the knowledge to date on the biology, causes and diagnosis of rare neuroimmune disorders and how they relate to each other,
- Understand controversies and challenges with rare neuroimmune disorders, and
- Learn about the latest research advances, and strategies for management and treatment.
Audience
This conference is open to all individuals diagnosed with rare neuroimmune disorders, their families, and caregivers. Medical professionals interested in these disorders are also welcome to attend.
Supported in part through education grants from
* The Executive Committee of SRNA with the medical and scientific council determines the content and topics of the event. Supporters are not able to influence the education program.
Schedule
You can find a detailed agenda on Hopin.
© The Siegel Rare Neuroimmune Association and The University of Texas Southwestern take responsibility for the content of this education activity. This schedule is subject to change.
Venue
The 2023 Virtual RNDS will be held on Hopin Online Platform.
1. Please join us by clicking on the “register for online event only” button above.
2. Click on “Join Event”
3. If you joined us for our 2022 RNDS last year, you can sign in with your existing Hopin account. If this is your first time, please create a new account
3. Set up your profile
We recommend:
- Troubleshooting your internet before joining the conference to help prevent lag. We will be recording and if you are having trouble, you can access it at a later time.
- Using the same profile image & personal description when creating your Hopin profile for people to easily recognize you. Be sure to add information in your bios like whether you are a person affected by a rare neuroimmune disorder, a caregiver, or a medical professional. This will let others know a little bit about you when connecting.
- Checking out the posted schedule in Hopin and adding to your personal calendar so you do not miss any talks.
- Keeping a handy headphone set in case you have the opportunity to network/connect within Hopin.
- Placing a light in front of you or switching on the lights above so people can clearly see you in video calls.
- Staying connected to a power source so your computer does not lose power.
Code of Conduct
Connecting and interacting virtually poses many different considerations, which is why we have put together a code of conduct to help attendees navigate this year’s event.
Leave space for true dialogue.
Allow time and space for everyone to share their thoughts during sessions or other small groups. While pauses in conversation can feel uncomfortable or unnatural for some, leaving space allows second-language speakers as well as introvert/introspective personalities to gather their thoughts.
Mute except when speaking.
When speaking, please use video if your connection allows as non-verbal communication can aid in inclusive communication between individuals.
Network respectfully and support others.
The Hopin platform limits networking conversations to approximately three (3) minutes. If during networking, individuals would like to continue the conversation beyond these 3 minutes, Hopin provides private chat functionality for each individual to provide personal contact information within their profile for alternative follow up communication.
Harassment will not be tolerated.
Harassment includes offensive verbal or written comments related to race, religion, gender, gender identity, disability, body size, physical appearance, national origin, or sexual orientation, intimidation, stalking or unwelcome sexual attention.
If you are being harassed or notice someone being harassed, please contact a member of the conference staff immediately by emailing [email protected].
Conference or SRNA staff will tell the offender to stop the defined harassing behavior. If the behavior continues, the offender will be expelled from the conference. The SRNA reserves the right to exclude the offender from future SRNA events.
Be mindful of differences.
Everyone does their best work when they can be themselves in an environment that fosters diversity, inclusion and respect. SRNA is committed to creating and maintaining a welcoming and respectful working environment where every person regardless of background or individual experience can truly thrive and contribute.
Accessibility
Please email [email protected] as soon as possible so that we can collaborate on how best to provide accessibility for you throughout the 2023 RNDS.
Please take this time to fuel yourself mentally and physically.
Worried about missing out on the content? We’ll be recording as much of the 2023 RNDS talks as possible to share via our YouTube account over the coming months. During the conference, be sure to take breaks in order to care for yourself. Do a few stretches and a few breathing exercises to get your body and mind moving and stimulated.
Blind and Visually Impaired.
Our schedule is available in large print on the 2023 RNDS website as well as via PDF for physical printing/enlargement. Your feedback is incredibly valuable if you have any comments or suggestions.
General Help.
Throughout the 2023 RNDS, SRNA staff will be available for general help & questions.
Other Needs?
We welcome your suggestions and ideas and would like to learn from your experiences. Please contact us at [email protected]
