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An education and advocacy conference for families, caregivers and individuals diagnosed with Transverse Myelitis (including the subtype Acute Flaccid Myelitis), Neuromyelitis Optica Spectrum Disorder, Optic Neuritis and Acute Disseminated Encephalomyelitis
August 13, 2016 | Denver, Colorado
Hosted by The University of Colorado, Denver & The Siegel Rare Neuroimmune Association
12605 E 16th Avenue, Aurora, CO 80045
Welcome to the 2016 Regional Rare Neuroimmune Disorders Symposium for Transverse Myelitis (TM) (including the subtype Acute Flaccid Myelitis), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Acute Disseminated Encephalomyelitis (ADEM).
This conference hosted by The Siegel Rare Neuroimmune Association (SRNA) and The University of Colorado, Denver is dedicated to the exchange of information regarding diagnosis, research and treatment strategies and to providing an opportunity to bring together the community of individuals diagnosed with these rare neuroimmune diseases, families, caregivers and the medical professionals who have interest and are specializing in these disorders.
This is the first regional conference focused on rare neuroimmune disorders.
This conference is open to all individuals diagnosed with AFM, TM, NMOSD, ON or ADEM, their families and caregivers. Medical professionals interested in these diseases are also welcome to attend.
8:00-8:30 am Welcome & Discussion of Acute Flaccid Myelitis (AFM) and Acute Disseminated Encephalomyelitis (ADEM) Teri Schreiner, MD
8:30-8:45 am Discussion of Neuromyelitis Optica Spectrum Disorder (NMOSD) and Transverse Myelitis (TM) Jeffrey Bennett, MD, PhD
8:45 – 9:45 am TM, AFM, NMOSD, ADEM: Diagnosis and Treatment Discussion Panel Enrique Alvarez, MD, PhD | Jeffrey Bennett, MD, PhD | Siamac Esfandi, MD Augusto Miravalle, MD | Sara Qureshi, MD | Teri Schreiner, MD
9:45-10:00 am Break
10:00-11:00 pm Understanding the Symptoms After a Non-Traumatic Spinal Cord Injury Sara Qureshi, MD
11:00-12:00 pm Role of Rehabilitation in Rare Neuroimmune Disorders Janet Dean, MS, RN, CRRN, CRNP
12:00-1:00 pm Lunch
1:00-1:30 pm Symptoms Management: Pain Augusto Miravalle, MD
1:30-2:00 pm Symptoms Management: Fatigue Anastacia Wall, PA-C
2:00 – 2:45 pm Symptoms Management: Autonomic Loss of Function Jill Schofield, MD
2:45 – 3:00 pm BREAK
3:00-3:30 pm Overview on Research at the University of Colorado School of Medicine Timothy Vollmer, MD
3:30 – 4:00 pm Question and Answer Session
© The Siegel Rare Neuroimmune Association and The University of Colorado, Denver take responsibility for the content of this education activity. This schedule is subject to change.
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