Rare Disease Day 2017

Today marks the 10^th annual Rare Disease Day, which takes place on the last day of February. The main objective is to raise awareness with the general public and decision-makers about rare diseases and their impact on patients’ lives. This year’s global theme is research.

Here at The Siegel Rare Neuroimmune Association (SRNA), we are dedicated and focused on facilitating research to advance knowledge about Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM), including Acute Flaccid Myelitis (AFM).

SRNA supports the efforts of researchers studying rare neuroimmune disorders by providing grant funding for research studies, supporting the training of clinician-scientists through our James T. Lubin Fellowship, and conducting SRNA-led research studies. Through these channels, significant research is being done to better understand these rare neuroimmune disorders and develop improved acute therapies and symptom management strategies.

Our work is made possible through the generous support of our community, foundations, and corporations who believe in our goal to improve the quality of life of individuals living with rare neuroimmune disorders. By choosing to donate today in honor of Rare Disease Day, you are actively helping to advance research, enhance clinical care, raise awareness and advocate for rare neuroimmune disorders.