Announcing the 2018 SRNA Quality of Life Family Camp!

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SRNA is excited to announce that our partnership with the Center for Courageous Kids (CCK) in Scottsville, KY continues with our 2018 SRNA Family Camp. Be sure to mark your calendars for Sunday, July 22 through Thursday, July 26, 2018, for the next annual SRNA Family Camp!

HOW TO APPLY?

To begin the application process, please complete the form located at https://tma.ong/2BBlSZs. A SRNA staff member will contact you via email within 48 hours to share additional information about the application process.

WHO IS ELIGIBLE?

  • Families with children diagnosed with ADEM, NMOSD, TM, ON and AFM who are 5 to 17 years old are eligible to apply to camp. Camp is open to families around the world.
  • Applications are welcome from older and younger children, who may be accepted on a case-by-case basis. If you are uncertain about your eligibility, please complete the initial application and we will be in contact with you if there are any questions!
  • Up to two adults living in the same household as the camper and the camper’s siblings may participate in camp.
  • All applicants must be members of SRNA. Membership is free. If you are not a member, please complete the membership form prior to completing the initial application: https://wearesrna.org/join/.

ARRIVAL AND DEPARTURE INFORMATION

Families will receive detailed information about arrival and departure times along with their acceptance confirmation directly from CCK. In general, most families arrive at camp around 3:00 pm on the first day of camp. Camp closes at noon on the last day of camp. The closest airport is Nashville, Tennessee. It is your responsibility to arrange for transportation to and from camp. CCK and SRNA are unable to offer transportation to and from camp. For a listing of ground transportation options between the airport and camp, please contact SRNA at [email protected]. Please do not make airline reservations until you receive an acceptance email or letter from CCK.

WHAT IS THE COST?

There is no cost for families to come to camp besides personal travel expenses. SRNA and CCK have a partnership under which we cover the cost of camp. SRNA will be able to offer limited financial assistance based on need and eligibility, via travel grants to families. All accepted families will receive an email with an application form and guidelines to apply for this funding in early summer 2018. They will be offered on a first come, first served basis to eligible families until grant funds are no longer available. Grant funds are disbursed as reimbursements and only once each of the grant requirements are met.

EDUCATION PROGRAM

Medical professionals and specialists from our community will be attending camp and provide a three-day education program for the parents and any of the children, teens, or young adults who attend camp and are interested in the education program. All medical volunteers attending SRNA Family Camp have been invited by SRNA to join as camp volunteers and to participate in an educational program during the camp. The medical volunteers may share their experience and make recommendations, but will not be able to provide specific medical advice.

QUESTIONS?

Please feel free to contact us at any time for additional information or to learn more about our Family Camp!

Rebecca Whitney: [email protected] |1-855-380-3330 ext 5.