On behalf of our Phoenix Support Group Leader, Gail Buch, we are inviting you to join us on Friday, November 13 at 1:00 p.m. (Arizona local time) for an online meeting that focus on how to use the SRNA website.
Those who attend will learn how to access our Resource Library, find a doctor who specializes in rare neuroimmune disorders, participate in research, and more!
If you are planning to attend, please RSVP below to receive the login information. Please check your Spam folder if you do not receive an email within 24 hours of signing up.
RSVP
Being an advocate for yourself is important. The Siegel Rare Neuroimmune Association promotes self-advocacy through our programs and educational materials.
Our website has hundreds of resources (videos, articles, podcasts) available on diagnosis, treatment, symptom management, etc. We also have a Medical Professional Network to help you find care in your area. In addition, we have a helpline and peer connect section to help answer questions.
There is so much available information if you know where to find it. And we’re excited to help you do just that!
Join this meeting and learn how to be your own best advocate!
Thank you to Gail for making this happen.
Here are the details for this online support group meeting on how to use the SRNA website.
First, make sure your computer, tablet, or phone is compatible with Zoom.
Also, please make sure you mute yourself when you are not speaking. The presenter is able to mute and unmute attendees, but it is easier if we all work together to ensure there is no background noise. Along those same lines, we recommend using headphones if possible. It helps eliminate feedback and makes it easier for attendees to hear more clearly.
Zoom allows for video and audio options. You are welcome to join via your computer and webcam device, tablet, or you can simply call in via phone. There is no requirement to turn on your camera if you do not want to.
We will start on time to respect everyone’s schedule.
If you have any questions, comments, or concerns before or during the meeting, please contact Jeremy Bennett at [email protected] and he will assist you.
SRNA Support Group Meetings are sponsored in part by
Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal is to deliver medical breakthroughs where none currently exist, and they are committed to ensuring that patient perspective and community engagement is always at the forefront of their work.
Founded more than 40 years ago, Genentech is a leading biotechnology company that discovers, develops, manufactures and commercializes medicines to treat patients with serious and life-threatening medical conditions. The company, a member of the Roche Group, has headquarters in South San Francisco, California. For additional information about the company, please visit https://www.gene.com.
Viela Bio is dedicated to the development and commercialization of novel, life-changing medicines for patients with a wide range of autoimmune and severe inflammatory diseases. Their team is comprised of passionate, talented, world-class leaders with diverse experience in the autoimmune disease space, and their research focuses on well-established critical biological pathways shared across multiple indications.
* Support Group Leaders and the SRNA determine the content and topics of the meetings. Sponsors are not able to influence the program.
