We invite you to gather together with SRNA’s founders, partners, fellow community members, and leading medical professionals together for a one-day, virtual event in honor of Rare Disease Day 2024.

The event will feature roundtables with community members and founders, sessions on raising funds for rare, navigating awareness months, how to become a Center of Excellence, and more.

Finally, help us celebrate 30 years of SRNA by attending a special, won’t-want-to-miss segment at the event honoring our anniversary where we will be highlighting our journey and achievements over the last three decades.