Join us for a new online support group specifically for Parents and Caregivers of those diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, or TM. Hosted by Balsam A., our UK Parent Support Group Leader, and Rebecca W., Associate Director of SRNA, we’re excited to bring our global Parent & Caregiver community together!

We hope to connect and learn from one another about our challenges, concerns, celebrations, and needs as we advocate for our children, transition our teens, and support our young (& not so young!) adults through the years after a rare neuroimmune disorder diagnosis.

All parents and caregivers are welcome, no matter where you are located or when your loved one was diagnosed.

This is our first meeting, and we hope you’ll join us for time to connect and support one another and share what you’d like in future sessions! So, parents and caregivers, bring your questions, share your stories, or simply listen in and know you’re not alone!

Horizon is focused on the discovery, development and commercialization of medicines that address critical needs for people impacted by rare, autoimmune and severe inflammatory diseases. They apply scientific expertise and courage to bring clinically meaningful therapies to patients. Horizon believes science and compassion must work together to transform lives.

Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal is to deliver medical breakthroughs where none currently exist, and they are committed to ensuring that patient perspective and community engagement is always at the forefront of their work.

* Support Group Leaders and the SRNA determine the content and topics of the meetings. Sponsors are not able to influence the program.