Highlighting the 2023 Midwest Walk-Run-N-Roll

“What were perfect strangers at 9am were family by 9:30. That is such an amazing feeling that triggered such an emotional response that I wasn’t prepared for. I finally got to meet people face to face that I have been talking to for more than a year. I saw my daughter surrounded by love and support. Not just from the people who know her and know her story and her struggle, but by people who know and can relate what she is going through. People with the same shared experience. An experience I will never know and never be able to fully understand. But these people, these amazing humans, this fierce community, they were there for her in a way that I never will be able to. They showed up, they hugged her, and they said, “Me too.”

We see and say all the time “stronger together” but in full transparency, I don’t think I really understood what that meant until Sunday. And it was the most beautiful thing I have ever seen.”

-Megan Willis-Beikman, volunteer host

SRNA’s Lydia Dubose and Skye Corken greeted attendees as they arrived, distributing event shirts and sharing other materials. Skye kicked off the event by welcoming attendees and giving a big thanks to Angie and Megan for all the hard work they put into the event. Scott Keck, Angie’s husband, then spoke a few words about how they are connected to SRNA and the importance of events like Walk-Run-N-Rolls and SRNA’s Quality of Life Family Camp. Later, Lydia shared more about the history of our organization and the impact of raising awareness for the rare neuroimmune disorders community.