Peer Connect Program

Get matched. Get connected. Get support.

Whether you are newly diagnosed or have been living with a rare neuroimmune disorder for years, we can match you with someone who can offer support. Peer Connect Leaders (PCL) are volunteers who have been diagnosed with a rare neuroimmune disorder.

Sharing experiences with others who truly understand what it is to live with or care for another with a rare neuroimmune disorder can be life-changing. PCLs are trusted individuals who can offer essential information, give emotional support, and share what they have learned. Peer Connect Leaders are not doctors, so they cannot dispense medical advice; however, they can direct you to resources to help answer your questions.

If inclined, please visit here to sign up for peer connection.

Fill out the form, and you will be matched with a PCL. Our current program can only match English or Spanish-speaking members — and assist with non-urgent matters. If you are a non-English speaker or have a situation requiring immediate attention, please get in touch with us at [email protected].

This program is not intended to provide individuals with crisis or emergency support. If you or a community member are experiencing an emotional or mental health crisis and live in the United States, please call the National Suicide Hotline at 1-800-273-TALK (8255), or text the Crisis Text Line by texting “start” to 741741. If you or a community member are experiencing an emotional or mental health crisis and live outside of the United States, please Find A Helpline or call your local emergency services.