A Call For Community Stories

Your Story Matters

Since 1994, SRNA has supported individuals affected by rare neuroimmune disorders such as ADEM, AFM, MOGAD, NMOSD, ON, and TM. Founded by families and individuals directly impacted, SRNA has grown into an international organization dedicated to empowering, educating, and supporting our community.

The narrative of SRNA’s journey is not just about the organization itself, but, more importantly about the stories of the individuals and families whose lives have been touched by these conditions.

“None of what you are going through is ever lost on me, as I had a front row seat watching all the challenges Pauline experienced for so many years. I am the first to applaud all the strides people make in their recoveries, as well as all the progress we make in understanding and treating these disorders.”
—Sandy Siegel, SRNA President

“I have met hundreds of people with MOG and NMOSD, some with similar stories to mine and some with very different experiences. I have connected with these people more than I’ve ever connected with my peers, and I am so grateful to have found people who truly understand what it’s like to live with chronic illness.”
—Becca, SRNA Peer Connect Leader

“No matter how hard your journey is, there are people out there pushing for you to achieve great things. Whether it is your doctors, family, friends, or even a random stranger: do not give up because there are people who can and will help.”

—Sandra, SRNA community member

2024 marks more than just a milestone: it represents three decades of resilience, growth, and community solidarity. Join us in sharing your messages of hope for the next 30 years. Help us empower those diagnosed in with one of these disorders in the future, one story at a time. Please click here to submit your story.

From the bottom of our hearts, thank you for celebrating love and support with us. Because of you, we are Stronger Together.