Join us for a virtual Volunteer Meet & Greet in celebration of National Volunteer Week! If you’ve been curious about volunteering with SRNA, this is a great opportunity to meet current volunteers and hear about their experiences with the organization in a relaxed and informal setting.
If you can’t attend but have questions about getting involved with SRNA, please email us at [email protected].
Our education programs are supported by donations from our community, and in part by the sponsors below
Amgen Rare Disease is focused on the discovery, development and commercialization of medicines that address critical needs for people impacted by rare, autoimmune and severe inflammatory diseases. They apply scientific expertise and courage to bring clinically meaningful therapies to patients. Amgen Rare Disease believes science and compassion must work together to transform lives.
Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal is to deliver medical breakthroughs where none currently exist, and they are committed to ensuring that patient perspective and community engagement is always at the forefront of their work.
UCB innovates and delivers solutions that make real improvements for people living with severe diseases. They partner with and listen to patients, caregivers, and stakeholders across the healthcare system to identify promising innovations that create valuable health solutions.
* All educational content and programs are solely developed by the SRNA staff, members of the scientific board and approved by Board of Directors.