Patient Support Programs Available

SRNA offers a variety of programs to support those with ADEM, AFM, MOGAD, NMOSD, ON, and TM after diagnosis. Download this flyer to share about our programs with your patients.

Some of the programs SRNA offers our community members include:

• Support Group Network: SRNA has built a virtual community to encourage connections all over the world through our Support Group Network. Participants can meet with others who have been diagnosed with a rare neuroimmune disorder and discuss how they are feeling, how they manage their symptoms, ask questions, and offer solutions to problems they have experienced.
• Peer Connect Program: Our Peer Connect Program pairs participants with a Peer Connect Leader, or PCL, who has the same or similar diagnosis and background. This volunteer-led initiative connects individuals diagnosed with a rare neuroimmune disorder or their care partner and loved ones to provide a safe space to discuss their diagnosis.
• Myelitis Helpline: The Myelitis Helpline is a free online resource that allows those who have recently been diagnosed, or anyone at any point after the onset of a rare neuroimmune disorder, to get answers and support about living with their disorder.
• Resource Library: The SRNA Resource Library is a collection of podcasts, symposium videos, research summaries, and info sheets that contain the most up-to-date information on rare neuroimmune disorders. The resources cover a variety of topics, including diagnostic criteria, symptom management, managing your care, latest research, and more.

You can learn more about all of SRNA’s patient support programs here.