Announcing the 2017 SRNA Annual Quality of Life Family Camp

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We are excited to announce that our SRNA Family Camp will be held Saturday, July 15 through Wednesday, July 19, 2017 at The Center for Courageous Kids (CCK) in Scottsville, KY.

To start the application process, please complete this online form. A SRNA staff member will contact you via email within 48 hours to share additional information about the application process.

Families with children diagnosed with ADEM, NMO, TM, ON and Acute Flaccid Myelitis (AFM) who are 5 to 17 years old are eligible to apply to camp.

Applications are welcome from older and younger children, who may be accepted on a case-by-case basis.

Up to two adults living in the same household as the camper and siblings may participate in camp.

All applicants must be members of SRNA. Membership is free. Become a member.

Families will receive detailed information about arrival and departure times along with their acceptance information from CCK. In general, most families arrive at camp around 3:00 pm on the first day of camp. Camp closes at noon on the last day of camp.

The closest airport is Nashville, Tennessee. For help with ground transportation between the airport and camp, please contact SRNA at [email protected] travel information. Please do not make plane reservations until you receive an acceptance letter from CCK.

There is no cost for families to come to camp besides personal travel expenses. SRNA and CCK have a partnership under which we cover the cost of camp.

SRNA will be able to offer some financial help, based on need, via travel grants to families. All accepted families will receive an email with an application form and guidelines to apply for this funding in approximately May 2017. They are offered on a first come, first served basis until grant funds are no longer available. Grant funds are disbursed as reimbursements once grant requirements have been met.

Medical professionals and specialists from our medical community will be joining camp and provide a three-day education program for the parents and any of the children, teen or young adults who attend camp and are interested in the education program.

All medical volunteers attending SRNA Family Camp have been invited by SRNA to join as camp volunteers and to participate in an educational program during the camp, where they will be able to share their experience and make recommendations, but will not be able to provide specific medical advice.

Rebecca Whitney
[email protected] |1-855-380-3330