Announcing the 2018 Regional Rare Neuroimmune Disorders Symposium

The Siegel Rare Neuroimmune Association, in partnership with Boston Children’s Hospital Center for Pain and The Brain, is excited to host the 2018 Regional Rare Neuroimmune Disorders Symposium (RNDS) in Boston, MA this October! The RNDS is an education and advocacy conference for families, caregivers and individuals diagnosed with Acute Disseminated Encephalomyelitis (ADEM), MOG Antibody Disease, Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (including the subtype Acute Flaccid Myelitis).

The objectives of this event are:

  1. Gather an understanding of the knowledge to date on the biology and causes of rare neuroimmune disorders and how they relate to each other;
  2. Learn about the latest medical and surgical strategies to manage the symptoms associated with these chronic rare neuroimmune disorders.

This conference is a great opportunity for individuals diagnosed with a rare neuroimmune disorder and their families to learn about these disorders and how to better advocate for themselves. Medical experts will be available to answer questions and provide the most up-to-date information regarding these disorders. We also encourage any medical professionals wanting a better understanding of rare neuroimmune disorders to attend.

The 2018 Regional RNDS is a one-day event, which will take place on Saturday, October 27th, 2018 at The Joseph B. Martin Conference Center at Boston Children’s Hospital. For more information, and to register for the event, please visit https://wearesrna.org/event/2018-rnds/.

About The Center for Pain and the Brain

The Center for Pain and the Brain is a multidisciplinary team comprised of leading neurologists, physician-scientists, psychologists, physicists and neurobiologists. Founded and directed by David Borsook MD PhD, the Center spans Harvard Medical School, Boston Children’s Hospital, Massachusetts General Hospital and McLean Hospital. Their research focuses on the discovery of novel pain pathways, developing novel high-throughput methods for evaluating analgesics, and incorporating results from animal research into human applications. They are one of the few Centers that evaluates both pediatric and adult patient groups. Conducting neuroimaging studies in both acute and chronic pain cohorts as well as experimental pain in healthy volunteers, these researchers seek to transform and improve the field of pain medicine.