Today, we want to take a moment to thank YOU for making SRNA a part of your life. We’re grateful to be part of such a wonderful and caring community – trusting us to support you and your loved ones during and after a rare neuroimmune diagnosis. We hope you can take this time to connect with your family members and friends during this season of thanks.
“I became a member of the Siegel Rare Neuroimmune Association in 2021 soon after my son Daniel (then 14 years old) was diagnosed with Transverse Myelitis in December 2020. The information on the SRNA website was so useful for me to access throughout but especially during my son’s long stay in hospital and his rehabilitation afterwards. I knew hardly anything about TM before it happened to him. I also attended RNDS online in 2021 and 2022 and found it extremely useful. Daniel and I attend SRNA patient support groups from time to time. Being able to participate in SRNA’s support groups. conferences and everything SRNA has done make us feel part of a global community that cares about us and look out for us.”
– Balsam, Daniel’s mom
“I still can’t feel much in my arms and legs. I still feel like a pin cushion every now and then due to the semi-annual infusions of Rituximab and the constant testing and monitoring. But I’m smiling because I am part of an unbelievable community called SRNA, and I know, no matter what, I’m going to be ok. On behalf of my amazing wife, my four incredible children, and our two dogs: thank you for all you have done for us.”
– Mike Hoffman
“Thank you for all the work you put into getting us here and giving us back a part of our lives that has come to mean so much to us… our camp!”
– SRNA Parent
We are also incredibly thankful for the Rachel Williams Foundation and SRNA’s Board of Directors, who, for Giving Tuesday, have generously decided to match every dollar raised up to $50,000 across all fundraisers and donations. All proceeds will go towards SRNA’s education, research, and community support programs. Please join us on Tuesday, November 29, in giving back, spreading kindness, and showing how together we can be a force for good.
There are people in our lives that make a world of a difference every day: it might be your team at the hospital, friends who take the time to understand your experience with a rare diagnosis, or the loved ones who offer support at home. Sometimes we forget to say thank you or can’t thank them enough — take a few minutes today to give them a shout-out online, write a note, or make a quick call. Let us know how you are giving out gratitude by emailing us at [email protected] or tagging us @wearesrna on social media.