New Video Series Spotlights Adaptive Tools and Resources for Independent Living
On August 6, the Siegel Rare Neuroimmune Association, The Guthy-Jackson Charitable Foundation, and The MOG Project announced Adapt-Ability, a collaborative video series designed to improve everyday life for the NMO, MOGAD, and neuroimmune community. The goal of this project is to create an educational resource spotlighting products and tips to improve independent living for adapting to disabilities following a rare neuroimmune diagnosis.
The first Adapt-Ability video features SRNA’s Director of Research and Programs, GG deFiebre. GG was diagnosed with transverse myelitis (TM) in 2009 and highlighted the different adaptive adjustments she’s made to make her living space more quad-friendly, including special door knobs, key holders, motion-activated devices, and more. She shares, “I’m so grateful to have these devices, hacks, and tools, and I hope that they may be helpful to you as well.”
The second video features community member Sarah Pritzker. Sarah was also diagnosed with TM in 2006. In her video, she shares more about the device she uses daily to help her walk, the Bioness L300 Plus System, and demonstrates how to wear and activate it. Sarah also uses Dynamic Tape daily. She shares, “When walking, I tend to turn my feet in, which also causes some awkward walking. So, to help correct it and help me have a more normal gait with less pain, I wear my Dynamic Tape and Bioness daily.”
We are proud to be building a resource that introduces various tools for adapting to life after a rare diagnosis. You can watch the first two videos on all of our organization’s social media platforms. Watch for the third video, which will be shared in the next few weeks!
