The Power of Community: Ashley’s Story
Meet Ashley.
Meet Ashley. Ashley was diagnosed with acute disseminated encephalomyelitis in 2007. Her journey has been marked by resilience and the relentless pursuit of better quality of life, demonstrating the powerful impact of determination and support within the SRNA community.
When asked how SRNA impacted Ashley’s journey, she shared: “For over 17 years I have developed friendships with others in a similar situation that can relate personally to what I am experiencing. SRNA staff, members and associated medical professionals have provided me with a wealth of information that put me on the right path to continuing my recovery and living my life to the fullest. I would be a rudderless ship without SRNA. Aside from the medical professionals associated with SRNA I have yet to be seen by a doctor or therapist (in 17 years) that has had a previous patient with ADEM. This includes seeing specialists at top medical facilities in the country. SRNA provides me access to the doctors, therapists, researchers, support groups, camps/symposiums and other resources that have guided me in my recovery and enhancing my quality of life.”
Thank you, Ashley, for inviting us into your lives and allowing us to document your story and share it with our community. There has been no better way to celebrate 30 years of SRNA than by spending time with community members like Ashley.
As we reflect on the past 30 years, we recognize that SRNA is where we are today because of our community. In honor of our 30th, we are sharing six stories from members of our community who have shaped our collective journey. Their stories highlight the challenges, triumphs, and determination of those living with rare neuroimmune disorders. Through these stories, we are celebrating the resilience, power, and togetherness that define who we are. Visit srna.ngo/poc to check out the next five stories we’ve filmed of members of our community as they release in upcoming weeks.
Hand in hand with these stories, we are excited to announce our 30th Anniversary Matching Campaign. Until the end of 2024, your donation will be doubled across all fundraisers and donations thanks to the generosity of SRNA’s board of directors, who will match every dollar raised up to $200,000. Your gift will directly support our mission to empower, educate, and support those affected by rare neuroimmune disorders. By contributing, you are making it possible for more individuals like Ashley to thrive.
