Take on a challenge
Pick something that you like doing. Do you enjoy working out? Take on an athletic challenge. Are you an artist? Challenge yourself to create five new pieces a day. Share photos and don’t forget to invite others to give!
Share your story
Consider sharing your own story or the story of someone you know who is affected by a rare disease. This can be a powerful way to raise awareness and encourage others to get involved in advocating for these conditions.
Together, we can make a difference. Take the first step today and set up your online fundraiser. Every contribution counts towards finding a cure and improving the quality of life for those with NMOSD.
Are you looking to set up fundraisers with teams, share weekly updates, or host an event? Contact us for more information.
You can do anything to raise money.
Need inspiration? These are a few of the campaigns that we will never forget
“When I was diagnosed with MOGAD, I got a lot of the answers I needed from SRNA. I really appreciated the group’s aim to fundraise for research and support for those that are affected by illnesses most people don’t typically hear about. I felt it necessary to join the cause and spread awareness to help those going through what I’ve gone through and beyond that.”
“I cannot speak highly enough about this organization. When I was initially diagnosed, they made me feel less alone, despite the fact that very little was understood about the disease. Being diagnosed with a rare disorder has given me a whole new level of perspective. I am more grateful for simple things in life. It has also taught me the importance of advocacy, research, and teamwork. ”
“Erin’s condition of Transverse Myelitis was unexpected and disrupted her life. We’re still learning about it as she recovers, but we’re thankful for the SRNA to rely on, which has been our main resource for support and information. My goal is to raise awareness about these rare neuroimmune disorders while providing support to the individuals and their families that have endured through these issues.”
“On Saturday, August 1, 2020 I will be doing the Jersey Girl Triathlon – a race I enjoyed before the onset of GBS/TM. I will make adaptions – for the swim I will use a swim noodle in case my muscles spasm, I’ll ride a tricycle instead of using my racing bike, and I might walk instead of run. But I will be doing something I love. Partly because I can but more importantly, for those that can’t do these activities that many of us take for granted. I know I sure did!”
Thomas Silewicz in honor of Madi
“There are still many who are fighting TM. I know the pain and stock these families are feeling. Please join me and make a donation to Siegel Rare Neuroimmune Association (SRNA) to help fight TM and other rare disorders.”
“And picking up this cause and embracing this new family I never wanted but has welcomed me with open arms is becoming a huge passion. With such a rare neuroimmune disease and so little information out there, the SRNA has been a God-send organization to support my journey. And giving back in as many ways possible is something I plan to do until we have all the answers we need to solve these debilitating diseases.”