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Why is a Registry Important?
Every experience of a person living with a rare neuroimmune disorder matters. Every experience is unique. The SRNA Registry is crucial for understanding these experiences and finding commonalities to advance research and collaborate with researchers from around the world to speed the development of life-changing treatments and improve patient care.
Hear from Curtis Meadows, ambassador of the Registry Matching Campaign, and Dr. Benjamin Greenberg, internationally recognized clinician and scientist specializing in these disorders, about why advancing the SRNA Registry is so important.
A special and heartfelt thank you to our generous matching donor, Mike Myers, and to Curtis Meadows for making the connection and believing in the power of the Registry.