The world has surpassed the one-year mark of the COVID-19 pandemic, and we know there are still many questions left to be answered for the rare neuroimmune disorder community. Please read the below information carefully to know and understand the risks associated with this virus in the setting of a rare neuroimmune disorder.
Risk factors associated with COVID-19 may vary significantly for each individual diagnosed with a rare neuroimmune disorder (ADEM, AFM, MOGAD, NMOSD, ON, and TM). Although many who live with these diagnoses are healthy individuals, there are many with compromised or suppressed immune systems, respiratory concerns, and other factors that make their susceptibility to illness more significant. Each individual and family should know their risks and take appropriate precautions relative to their diagnosis and, if in doubt, consult your treating physician.
SRNA COVID-19 Resource Page
In March 2020, SRNA launched our COVID-19 Resource Page, where we compiled resources and information to aid our community in finding answers to their questions about the virus. Please keep in mind that SRNA cannot provide individualized medical advice. The information we have provided is for informational purposes only and is not intended to take the place of consultation with your physician. If you have concerns about your health or treatment, please contact your physician, pharmacist, or other medical professional.
COVID-19 Vaccines and Rare Neuroimmune Disorders with Dr. Benjamin Greenberg
Dr. Benjamin M. Greenberg, member of SRNA’s Board of Directors and SRNA’s Medical and Scientific Council, discussed COVID-19 vaccinations and the implications for those with rare neuroimmune disorders in a multi- part video series.
Participate in a research study on the experiences of individuals with rare neuroimmune disorders during the COVID-19 pandemic, including experiences with COVID-19 vaccinations. Participation involves an interview over the phone, which is expected to last approximately 30 minutes.
COVID-19 Q&A Series
We’re committed to sharing what we learn from our medical experts with you and providing answers to your questions. Last April, members of our Medical and Scientific Council, Dr. Benjamin Greenberg, Dr. Michael Levy, and Dr. Carlos Pardo, shared information in a Q&A series.
If you have any questions you would like answered or would like to contact us, please email [email protected] or call +1 (855)380-3330.