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2015 Rare Neuro Immune Disorders Symposium

EMERGING SCIENCE AND TREATMENTS

Friday & Saturday | October 23-24, 2015 | Dallas, Texas
UT Southwestern | T. Boone Pickens Medical Building

6001 Forest Park Rd
Dallas, TX 75390

Welcome to the 2015 Rare Neuroimmune Disorders Symposium on Emerging Science and Treatments for Transverse Myelitis (TM) (including the subtype Acute Flaccid Myelitis), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Acute Disseminated Encephalomyelitis (ADEM). This conference, hosted by The Siegel Rare Neuroimmune Association (SRNA), The University of Texas Southwestern Medical Center (UTSW), Children’s Health – Dallas and The Johns Hopkins Transverse Myelitis Center (JHTMC), is dedicated to the exchange of information regarding diagnosis, research, and treatment strategies, and to providing an opportunity to bring together the community of individuals diagnosed with these rare neuroimmune diseases, families, caregivers, and the medical professionals who have interest and are specializing in these diseases.

In addition to the education program, SRNA will be hosting pre-conference workshops and courses to build an enhanced support network system and advance the clinical training and science to achieve better quality of life for individuals diagnosed with rare neuroimmune disorders and their families.

The International Myelitis Working Group Meeting will be held on October 23rd with invited scientists and clinicians to update diagnostic criteria and recommended diagnostic evaluation for non-traumatic myelopathy, with special emphasis on Myelitis (INVITED PARTICIPANTS). View Agenda

An advocacy workshop will be held on October 23rd with SRNA support group leaders to expand the support group network and infrastructure globally.

A neuro-rehabilitation pre-course will be held on October 23rd in partnership with The International Center for Spinal Cord Injury at The Kennedy Krieger Institute to offer physical therapists and occupational therapists an opportunity to learn about neuro-rehabilitation in AFM, TM, NMOSD and ADEM. For more information on the ABRT pre-course click here.

OBJECTIVES

  1. Acquire an understanding of the biology and causes of rare neuroimmune disorders (TM, NMOSD, AFM, ADEM, and ON) and how they relate to each other
  2. Learn about the latest medical and surgical strategies to manage the symptoms associated with these chronic rare neuroimmune disorders
  3. Gather information and knowledge on the latest acute and long-term immunotherapies, clinical studies, and future treatment strategies

AUDIENCE

This conference is open to all individuals diagnosed with AFM, TM, NMOSD, ON, or ADEM, their families and caregivers. Medical professionals interested in these disorders are also welcome to attend.

2015_RNDS_Registration_Fees-01

Discounted fees are available for members of SRNA. Please note that membership to SRNA is free. We encourage all individuals diagnosed with a rare neuroimmune disease, caregivers, relatives and medical professionals to sign up here.

* Children under 12 years of age can attend the symposium at no cost

Video recordings of all presentations will be available for viewing on our website.

View The RNDS Agenda

PRESENTING SPONSOR

GOLD SPONSORS

Educational Support Services: Understanding IEPs and 504 Plans for Students Diagnosed with TM (including AFM), ADEM, and NMOSDSouth Bend/Mishawaka Support Group Meeting