An education and advocacy conference for families, caregivers and individuals diagnosed with Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (including the subtype Acute Flaccid Myelitis)
Welcome to the 2017 Rare Neuroimmune Disorders Symposium where we will learn about these rare neuroimmune disorders, and examine what the future will look like in five years for individuals and families affected by Acute Disseminated Encephalomyelitis (ADEM, Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (including the subtype Acute Flaccid Myelitis).
This conference, hosted by The Siegel Rare Neuroimmune Association (SRNA), The Johns Hopkins Transverse Myelitis Center (JHTMC) and NMO Clinic, The University of Texas Southwestern Medical Center (UTSW) and Children’s Medical Center CONQUER Program, is dedicated to the exchange of information regarding diagnosis, research, and treatment strategies, and to providing an opportunity to bring together the community of individuals diagnosed with these rare neuroimmune disorders, families, caregivers, and the medical professionals who have interest and are specializing in these disorders.
This conference is open to all individuals diagnosed with ADEM, NMOSD, ON, and TM, including AFM, their families and caregivers. Medical professionals interested in these disorders are also welcome to attend.
2017 OHIO WALK-RUN-N-ROLL EVENT
The Siegel Rare Neuroimmune Association is committed to building a supportive community of individuals diagnosed with ADEM, NMOSD, TM (including AFM) and raising awareness and funds to support research and education. The 2nd Annual OH Walk-Run-N-Roll Event will be held on Sunday, October 22, 2017 at Coffman Park Pavilion in Dublin, OH. The event is as an opportunity for our community to come together to share stories, experiences, and form lasting relationships all while increasing awareness of these rare neuroimmune disorders and raising funds that will allow SRNA to continue providing much needed educational programs like the RND Symposium and supporting research.
All are welcome to join.
Please indicate your interest to attend the walk when you register for the symposium, and we will send you an event registration confirmation with more details.
Click here for more information.
Online registration for the 2017 RNDS has closed. On-site registration will be possible at the event.
Video recordings of all presentations are available here.
Discounted fees are available for members of SRNA. Please note that membership to SRNA is free. We encourage all individuals diagnosed with a rare neuroimmune disorder, caregivers, relatives and medical professionals to sign up here.
* Children under 12 years of age can attend the symposium at no cost