Loading Events

« All Events

2020 Regional Rare Neuroimmune Disorders Symposium

August 29 @ 8:00 am - 5:00 pm MDT

Hosted by


Welcome to the 2020 Regional Rare Neuroimmune Disorders Symposium (RNDS) for Acute Disseminated Encephalomyelitis (ADEM), Acute Flaccid Myelitis (AFM), MOG Antibody-Associated Disease (MOG-Ab disease), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (TM).

This conference hosted by the Siegel Rare Neuroimmune Association (SRNA) and the University of Utah Health is dedicated to the exchange of information regarding diagnosis, research, and treatment strategies. It is also an opportunity to bring together the community of individuals diagnosed with rare neuroimmune disorders, families, caregivers, and the medical professionals who are specializing in these disorders.

OBJECTIVES

  1. Acquire an understanding of rare neuroimmune disorders (ADEM, AFM, MOG-Ab disease, NMOSD, ON, TM) and how they relate to each other
  2. Learn about the latest therapies and strategies to manage the symptoms associated with these chronic rare neuroimmune disorders, including clinical studies and future treatment strategies

AUDIENCE

This conference is open to all individuals diagnosed with ADEM, AFM, MOG-Ab disease, NMOSD, ON, and TM, their families and caregivers. Medical professionals interested in these disorders are also welcome to attend. SRNA can provide certificates for attendance for those who would like to apply for CME credits.

CONNECT

Attendees will have the opportunity to connect with one another, share experiences, interact with medical professionals and researchers, learn about and participate in research studies and SRNA programs during the one-day educational symposium.



Saturday, August 29, 2020

8:00-9:00 am

Breakfast and Registration

9:00-9:15 am

Welcome and Goals of the 2020 RNDS
Jonathan Galli, MD | University of Utah

9:15–10:45 am

What is TM, ADEM, NMOSD, MOG-Ab disease, AFM?
Learn about these rare neuroimmune disorders and how they are diagnosed?

Stacey L. Clardy, MD, PhD | University of Utah
Jonathan Galli, MD | University of Utah
Meagan Seay, DO| University of Utah
Michael Sweeney, MD | University of Louisville
M. Mateo Paz Soldán, MD, PhD and John W. Rose, MD | University of Utah

10:45-11:15 am

Mid-morning Break

11:15 am – 12:15 pm

Management and Treatment of TM, ADEM, NMOSD, MOG-Ab disease, AFM
Stacey L. Clardy, MD, PhD | University of Utah
Jonathan Galli, MD | University of Utah
Meagan Seay, DO| University of Utah
Michael Sweeney, MD | University of Louisville
M. Mateo Paz Soldán, MD, PhD and John W. Rose, MD | University of Utah

12:15-1:15 pm

Connect and Lunch

1:15-2:00 pm

Breakout sessions (select one topic in each session)

Imaging in Rare Neuroimmune Disorders
Scott McNally, MD, PhD | University of Utah

Social Work and Stress Management
University of Utah Neurology Social Work Team

Tour of Outdoor Access Program
Jeffrey P. Rosenbluth, MD | University of Utah

2:05-2:55 pm

Breakout sessions (select one topic in each session)

Imaging in Rare Neuroimmune Disorders
Scott McNally, MD, PhD | University of Utah

Social Work and Stress Management
University of Utah Neurology Social Work Team

Tour of Outdoor Access Program
Jeffrey P. Rosenbluth, MD | University of Utah

2:55-3:15 pm

Afternoon Break

3:15-3:30 pm

Updates from SRNA
SRNA Staff

3:30-4:30 pm

Panel Discussion (Q & A – Open Session)
Scott Belliston DO | Intermountain Health Care
Erica Marini PharmD | University of Utah
M. Mateo Paz Soldán, MD, PhD | University of Utah
John W. Rose, MD | University of Utah
Stacey L. Clardy, MD, PhD | University of Utah
Jonathan Galli, MD | University of Utah
Meagan Seay, DO| University of Utah
Michael Sweeney, MD | University of Louisville
Jeffrey P. Rosenbluth, MD | University of Utah
Scott McNally, MD, PhD | University of Utah

4:30-4:45 pm

Closing remarks

© The Siegel Rare Neuroimmune Association and the University of Utah take responsibility for the content of this education activity. Sponsors are not able to influence the education program. This schedule is subject to change.



info@wearesrna.org
+1 (855) 380-3330

SPONSORS



Details

Date:
August 29
Time:
8:00 am - 5:00 pm
Event Category:

Organizer

SRNA
Phone:
+1 (855) 380-3330
Email:
info@wearesrna.org
Website:
wearesrna.org

Venue

University of Utah, Imaging & Neurosciences Center
729 S Arapeen Dr
Salt Lake City, UT 84108 United States
+ Google Map

Details

Date:
August 29
Time:
8:00 am - 5:00 pm
Event Category:

Organizer

SRNA
Phone:
+1 (855) 380-3330
Email:
info@wearesrna.org
Website:
wearesrna.org

Venue

University of Utah, Imaging & Neurosciences Center
729 S Arapeen Dr
Salt Lake City, UT 84108 United States
+ Google Map