May is ADEM Awareness Month. To shine a light on Acute Disseminated Encephalomyelitis (ADEM) and the journeys of all those diagnosed with this rare disorder and their loved ones, we will be sharing stories, resources, facts, and helpful tips during the entire month of May.
Make a Difference: Five things you can do
1. Get the Word out
Our social media is filled with images and resources. Spread awareness by sharing our social media posts and #ThisIsADEM and #StrongerTogether during ADEM Awareness Month. Follow along on Facebook, Instagram, and Twitter, and join us this month in sharing facts about ADEM! Easy peasy!
2. Share your story
By bringing the faces and voices of those living with ADEM to the forefront, we can empower our communities, researchers, physicians, and governing entities to understand this rare and life-altering diagnosis better. Share your story in video or written format to be featured in our #ThisIsMe campaign or blog!
3. Take on a challenge
Don’t underestimate your power to start a movement! Pick something that you like doing. Do you enjoy working out? Take on an athletic challenge. Are you an artist? Challenge yourself to create five new pieces a day. Like to bake? Organize a bake sale. Consider setting up a fundraising page, where you can share about your challenge and invite others to contribute and make a difference. Remember to share why you’re taking on the challenge and how others can support you in your ADEM awareness journey!
4. Contact your legislators
Legislators have the power to pass bills into law that will have a direct impact on people. Contact public officials and tell them your story. Tell them you support policies that meet the unmet needs of individuals diagnosed with ADEM. In the United States, send a request to your mayor or governor for a proclamation in recognition of ADEM Awareness Month in your city or state. Speak up and speak out to make a difference!
5. Connect and learn
No matter where you are in the world, we invite you to join us as we recognize and spread the word about ADEM Awareness Month 2023. Learn more and register for ADEM Together, or find friendship and support at an upcoming Support Group Meeting.
Represent: Wear for rare
What will you do this #ADEMAwarenessMonth?
Email [email protected] and share your acts of awareness.