Join us for a special meetup highlighting how you can become a better advocate for rare neuroimmune disorders in the United States. This session features Jim Sliney with Patients Rising and Leah Campbell, SRNA volunteer and community advocate. Bring your questions, learn about advocacy and how you can get more involved.
You are invited to participate in this interactive community meetup, with the opportunity to ask questions, share personal experiences, and connect with others. Don’t miss this chance to learn, connect, and support the community of individuals impacted by rare neuroimmune disorders: ADEM, AFM, MOGAD, NMOSD, ON, and TM.
SRNA 2024 education and support programs are supported by donations from our community and in part through grants from
Amgen Rare Disease is focused on the discovery, development and commercialization of medicines that address critical needs for people impacted by rare, autoimmune and severe inflammatory diseases. They apply scientific expertise and courage to bring clinically meaningful therapies to patients. Amgen Rare Disease believes science and compassion must work together to transform lives.
Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal is to deliver medical breakthroughs where none currently exist, and they are committed to ensuring that patient perspective and community engagement is always at the forefront of their work.
UCB innovates and delivers solutions that make real improvements for people living with severe diseases. They partner with and listen to patients, caregivers, and stakeholders across the healthcare system to identify promising innovations that create valuable health solutions.
* All educational content and programs are solely developed by the SRNA staff, members of the scientific board and approved by Board of Directors.
