Join us for an online support group meeting hosted by Jennifer B. specifically for teens aged 13-18 with ADEM, AFM, MOGAD, NMOSD, ON, or TM! Connect with others your age and discuss what it’s like living with a rare neuroimmune disorder. All teens are welcome to ask questions, share their stories, or listen. Please consider this a virtual social hour, where we will have informal conversations and create connections among teens living with a rare neuroimmune disorder. This group is peer-led by a teen with a rare neuroimmune disorder, and this meeting will not be led by medical professionals. Attendees can come and ask questions of one another and SRNA.
This group is meant for teen participants only. We kindly ask that parents/guardians of attendees do not attend.
Participant Waiver: For those under 18 years old, a parent or guardian must consent and complete the participant waiver at least 24 hours before the start of the meeting. This is a requirement for your participation and the Zoom link will not be sent to those under 18 years old without a waiver submitted by their parent or guardian. If your parent or guardian has questions or concerns regarding the waiver, please have them email us with any questions.
SRNA Support Group Meetings are sponsored in part by
Horizon is focused on the discovery, development and commercialization of medicines that address critical needs for people impacted by rare, autoimmune and severe inflammatory diseases. They apply scientific expertise and courage to bring clinically meaningful therapies to patients. Horizon believes science and compassion must work together to transform lives.
Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal is to deliver medical breakthroughs where none currently exist, and they are committed to ensuring that patient perspective and community engagement is always at the forefront of their work.
Founded more than 40 years ago, Genentech is a leading biotechnology company that discovers, develops, manufactures and commercializes medicines to treat patients with serious and life-threatening medical conditions. The company, a member of the Roche Group, has headquarters in South San Francisco, California. For additional information about the company, please visit https://www.gene.com.
* Support Group Leaders and the SRNA determine the content and topics of the meetings. Sponsors are not able to influence the program.