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Virtual Event Virtual Event

Parent Support Group Meeting

April 17 @ 7:00 pm - 8:00 pm CDT

Virtual Event Virtual Event
Illustration of people in boxes, like computer windows, with speech bubbles

Join us for an online support group meeting hosted by Megan, specifically for parents of people diagnosed with rare neuroimmune disorders! Anyone is welcome, no matter where you are located. If you are a parent of an individual diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, or TM, we invite you to join us.

Ask questions, share your stories, or just listen – everyone is welcome.

Register today!

 

SRNA 2025 education and support programs are supported by donations from our community and in part through grants from

 

Amgen Rare Disease is focused on the discovery, development and commercialization of medicines that address critical needs for people impacted by rare, autoimmune and severe inflammatory diseases. They apply scientific expertise and courage to bring clinically meaningful therapies to patients. Amgen Rare Disease believes science and compassion must work together to transform lives.

Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal is to deliver medical breakthroughs where none currently exist, and they are committed to ensuring that patient perspective and community engagement is always at the forefront of their work.

 

Founded more than 40 years ago, Genentech is a leading biotechnology company that discovers, develops, manufactures and commercializes medicines to treat patients with serious and life-threatening medical conditions. The company, a member of the Roche Group, has headquarters in South San Francisco, California. For additional information about the company, please visit https://www.gene.com.

 

* All educational content and programs are solely developed by the SRNA staff, members of the scientific board and approved by Board of Directors.

Details

Date:
April 17
Time:
7:00 pm - 8:00 pm CDT
Event Category:
Website:
https://us02web.zoom.us/meeting/register/ePL_D4cASiiJBhjK6L2QZQ

Organizer

Megan Willis-Beikman
Email
kansascitysupport@wearesrna.org

Details

Date:
April 17
Time:
7:00 pm - 8:00 pm CDT
Event Category:
Website:
https://us02web.zoom.us/meeting/register/ePL_D4cASiiJBhjK6L2QZQ

Organizer

Megan Willis-Beikman
Email
kansascitysupport@wearesrna.org