Over 300 million people worldwide are living with a rare disease — this includes many members of our community. Every February, we come together for #RareDiseaseMonth to amplify their voices, share their stories, and drive change. From patients and caregivers to researchers, policymakers, and advocates, every voice matters. Here’s how you can get involved:
1 Minute
Share our social media posts, or create your own! Follow us on our platforms and help share facts and resources about rare neuroimmune disorders. Easy peasy!
1 Hour
Share your story with a blog, a quote, or a video. How has being part of the rare neuroimmune disorders community impacted you? How do you envision the future of the rare neuroimmune disorders community? Your voice matters.
1 Day
Host a gathering or event for Rare Disease Day on February 28. No event is too small! Whether you create a gathering for five people or fifty, you will make an impact. If you’re already hosting an event, sign up here, and we’ll add it event to our calendar.
