Over 300 million people worldwide are living with a rare disease — this includes people with ADEM, AFM, MOGAD, NMOSD, ON, and TM. Every February, we come together for #RareDiseaseMonth to amplify voices, share stories, and drive change for people living with a rare disease. From patients and caregivers to researchers, policymakers, and advocates, every voice matters.
1 Minute
Share our social media posts, or create your own! Follow us on our platforms (Instagram, FB, X, LinkedIn, TikTok) and help share facts and resources about rare neuroimmune disorders. Easy peasy!
1 Hour
Share your story with a blog, a quote, or a video. How has being part of the rare neuroimmune disorders community impacted you? How do you envision the future of the rare neuroimmune disorders community? Your voice matters.
1 Day
Host a gathering or event for Rare Disease Day on February 28. No event is too small! Whether you create a gathering for five people or fifty, you will make an impact. If you’re already hosting an event, sign up here, and we’ll add it event to our calendar.
