Join us for an online support group meeting hosted by Emily, our Sibling Support Group Leader, in collaboration with The Guthy-Jackson Charitable Foundation! This group is for siblings aged 18 years or older of individuals diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, or TM. This is an opportunity to connect with other siblings, share your experiences, and receive support from those who understand. Ask questions, share your stories, or just listen – everyone is welcome.
SRNA 2024 education and support programs are supported by donations from our community and in part through grants from
Amgen Rare Disease is focused on the discovery, development and commercialization of medicines that address critical needs for people impacted by rare, autoimmune and severe inflammatory diseases. They apply scientific expertise and courage to bring clinically meaningful therapies to patients. Amgen Rare Disease believes science and compassion must work together to transform lives.
Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal is to deliver medical breakthroughs where none currently exist, and they are committed to ensuring that patient perspective and community engagement is always at the forefront of their work.
UCB innovates and delivers solutions that make real improvements for people living with severe diseases. They partner with and listen to patients, caregivers, and stakeholders across the healthcare system to identify promising innovations that create valuable health solutions.
* All educational content and programs are solely developed by the SRNA staff, members of the scientific board and approved by Board of Directors.
