Loading Events

« All Events

Virtual Event Virtual Event

Siblings Support Group Meeting

March 3 @ 7:30 pm - 8:30 pm EST

Virtual Event Virtual Event

Join us for an online support group meeting hosted by Emily, our Sibling Support Group Leader, in collaboration with the Guthy-Jackson Charitable Foundation! This group is for siblings aged 18 years or older of individuals diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, or TM!

This is an opportunity to connect with other siblings, share your experiences, and receive support from those who understand. Ask questions, share your stories, or just listen – everyone is welcome.

REGISTER NOW

 

SRNA 2024 education and support programs are supported by donations from our community and in part through grants from

 

Amgen Rare Disease is focused on the discovery, development and commercialization of medicines that address critical needs for people impacted by rare, autoimmune and severe inflammatory diseases. They apply scientific expertise and courage to bring clinically meaningful therapies to patients. Amgen Rare Disease believes science and compassion must work together to transform lives.

Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal is to deliver medical breakthroughs where none currently exist, and they are committed to ensuring that patient perspective and community engagement is always at the forefront of their work.

Founded more than 40 years ago, Genentech is a leading biotechnology company that discovers, develops, manufactures and commercializes medicines to treat patients with serious and life-threatening medical conditions. The company, a member of the Roche Group, has headquarters in South San Francisco, California. For additional information about the company, please visit https://www.gene.com

 

* All educational content and programs are solely developed by the SRNA staff, members of the scientific board and approved by Board of Directors.

Details

Date:
March 3
Time:
7:30 pm - 8:30 pm EST
Event Category:
Website:
https://us02web.zoom.us/meeting/register/tZ0qcuqhrTojHdQD9Bsw1Z_utcyXX8-QVUgc

Venue

Zoom

Organizer

Emily Woolf
Email
siblingsupport@wearesrna.org

Details

Date:
March 3
Time:
7:30 pm - 8:30 pm EST
Event Category:
Website:
https://us02web.zoom.us/meeting/register/tZ0qcuqhrTojHdQD9Bsw1Z_utcyXX8-QVUgc

Venue

Zoom

Organizer

Emily Woolf
Email
siblingsupport@wearesrna.org