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SRNA Annual Quality of Life Family Camp

July 26 - July 30

We’re excited and look forward to returning to The Center for Courageous Kids (CCK) once again next July!  Families, mark your calendars for family camp to return to CCK, July 26 – 30, 2022!

Our family camp for children diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, and TM, and their family members, is accessible and medically safe. The camp provides a chance for children with rare neuroimmune disorders and their family members to experience the joys of camp and connect with others who experience the same symptoms and conditions.

Please Note!: 

  • Appropriate COVID-19 safety protocols will be followed and required by both CCK and SRNA.  These safety protocols will be made available when applications are reviewed and you receive an invitation to camp.
  • Compliance with COVID-19 safety protocols for camper families will be mandatory. For more information and resources relative to COVID-19, please visit our COVID-19 page.
  • CCK and SRNA also reserve the right to cancel camp, notifying families accordingly, if it is deemed unsafe to gather in-person. Appropriate communications will be sent should this need to happen.
  • SRNA membership is a requirement to apply and attend family camp. If you are not yet a member of SRNA, please join here Please also be sure to sign-up to receive email and blog announcements to ensure you receive notifications when our camp application opens! 
  • The camp application is a two-step process. You must apply with SRNA prior to completing CCK’s application. Please read below to begin your application process.

Please visit our Quality of Life Family Camp page or you may begin your app process with our pre-application

If you have any questions or require additional information, please email [email protected] or, call or text Rebecca Whitney, Associate Director, Pediatric Programs at +1 (513) 449-0495.  We can’t wait to see you in person at CCK in July 2022!

 

2022 SRNA Quality of Life Family Camp is sponsored in part by:

The Roles Family Foundation  

 

Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal is to deliver medical breakthroughs where none currently exist, and they are committed to ensuring that patient perspective and community engagement is always at the forefront of their work.


Horizon is focused on the discovery, development and commercialization of medicines that address critical needs for people impacted by rare, autoimmune and severe inflammatory diseases. They apply scientific expertise and courage to bring clinically meaningful therapies to patients. Horizon believes science and compassion must work together to transform lives.

Venue

The Center for Courageous Kids
1501 Burnley Road
Scottsville, KY 42164 United States
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Venue

The Center for Courageous Kids
1501 Burnley Road
Scottsville, KY 42164 United States
+ Google Map