Join us for an online support group meeting hosted by Lyd. specifically for teens aged 13-18 with ADEM, AFM, MOGAD, NMOSD, ON, or TM! Connect with others your age and discuss what it’s like living with a rare neuroimmune disorder. All teens are welcome to ask questions, share their stories, or listen. Please consider this a virtual social hour, where we will have informal conversations and create connections among teens living with a rare neuroimmune disorder. This group is peer-led by a teen with a rare neuroimmune disorder, and this meeting will not be led by medical professionals. Attendees can come and ask questions of one another and SRNA.
This group is meant for teen participants only. We kindly ask that parents/guardians of attendees do not attend.
Participant Waiver: A parent or guardian of a minor in attendance must consent and complete the participant waiver before the start of the meeting. This is a requirement for your participation and to allow you access to the meeting. If your parent or guardian has questions or concerns regarding the waiver, please have them email us with any questions.
SRNA 2024 education and support programs are supported by donations from our community and in part through grants from
Amgen Rare Disease is focused on the discovery, development and commercialization of medicines that address critical needs for people impacted by rare, autoimmune and severe inflammatory diseases. They apply scientific expertise and courage to bring clinically meaningful therapies to patients. Amgen Rare Disease believes science and compassion must work together to transform lives.
Alexion is a global biopharmaceutical company focused on serving patients with severe and rare disorders through the innovation, development and commercialization of life-transforming therapeutic products. Their goal is to deliver medical breakthroughs where none currently exist, and they are committed to ensuring that patient perspective and community engagement is always at the forefront of their work.
UCB innovates and delivers solutions that make real improvements for people living with severe diseases. They partner with and listen to patients, caregivers, and stakeholders across the healthcare system to identify promising innovations that create valuable health solutions.
* All educational content and programs are solely developed by the SRNA staff, members of the scientific board and approved by Board of Directors.
