The Acute Flaccid Myelitis Working Group, Johns Hopkins Medicine, and Kennedy Krieger Institute organized this virtual symposium.
Resource Center
Part I: AFM Diagnosis and Acute Management
June 5 | 1:10–1:20 pm EST
Introduction
Cristina Sadowsky & Carlos Pardo, Kennedy Krieger Institute and Johns Hopkins University School of Medicine
Watch Video
June 5 | 1:20–1:40 pm EST
Keynote lecture: AFM, the disease
Kevin Messacar, Children’s Hospital Colorado
Watch Video
Download slides
June 5 | 1:40–1:55 pm EST
A Parent Perspective
Rachel Scott, AFM Association
Watch Video
Download slides
June 5 | 1:55–2:10 pm EST
What is known about the epidemiology of AFM
Janell Routh, Center for Disease Control and Prevention (CDC)
Watch Video
Download slides
June 5 | 2:10–2:25 pm EST
What is known about the viruses involved in AFM
Charles Chiu, University of California San Francisco
Watch Video
Download slides
June 5 | 2:25–2:40 pm EST
The impact of COVID-19 pandemic on enterovirus circulation and AFM
Bryan Grenfell and Daniel Park, Princeton University
Watch Video
June 5 | 2:40–3:00 pm EST
Panel Discussion led by TBA & Questions (round I)
Watch Video
June 5 | 3:00–3:15 pm EST
The pediatric patient with acute weakness. When to think about AFM
Elizabeth Wells, Children’s National Medical Center
Watch Video
Download slides
June 5 | 3:15–3:30 pm EST
How to diagnose AFM and what to do in the Emergency Department
Sarah Hopkins, Children Hospital of Philadelphia
Watch Video
Download slides
June 5 | 3:30–3:45 pm EST
Neuroimaging as a tool in the diagnosis of AFM
Olwen Murphy, Johns Hopkins School of Medicine
Watch Video
Download slides
June 5 | 3:45–4:00 pm EST
AFM as an infectious disorder
Roberta DeBiasi, Children’s National Medical Center
Watch Video
Download slides
June 5 | 4:00–4:15 pm EST
Misdiagnosis in AFM
Leslie Benson, Boston Children’s Hospital
Watch Video
June 5 | 4:15–4:30 pm EST
NIH Natural History Study of AFM
David Kimberlin, University of Alabama Birmingham
Watch Video
Download slides
June 5 | 4:30–4:50 pm EST
Panel Discussion led by TBA & Questions (round II)
Watch Video
Part II: Critical Care Management of AFM
June 12 | 1:10–1:20 pm EST
Introduction
Cristina Sadowsky & Carlos Pardo, Kennedy Krieger Institute and Johns Hopkins University School of Medicine
Watch Video
June 12 | 1:20–1:40 pm EST
The management of AFM in the ICU
Jessica Carpenter, Children’s National Hospital
Watch Video
Download Slides
June 12 | 1:40–2:00 pm EST
Respiratory issues in the acute phase of AFM
Becky Riggs, Johns Hopkins Children’s Center
Watch Video
Download Slides
June 12 | 2:00–2:20 pm EST
What we know about treatment in AFM
Leslie Benson, Boston Children’s Hospital
Watch Video
Download Slides
June 12 | 2:20–2:40 pm EST
Panel Discussion led by TBA & Questions (round I)
Watch Video
June 12 | 2:40–3:00 pm EST
Rehabilitation during the acute phase of AFM
Cristina Sadowsky, Kennedy Krieger Institute
Watch Video
Download Slides
June 12 | 3:00–3:20 pm EST
Early mobility in the ICU
Meghan Moore & Amy Bayliss, Johns Hopkins Children’s Center
Download Slides
June 12 | 3:20–3:40 pm EST
The neurophysiology of AFM
Matthew Elrick, Johns Hopkins School of Medicine
Watch Video
Download Slides
June 12 | 3:40–4:00 pm EST
AFM: Putting pieces together from admission to discharge
Benjamin Greenberg, University of Texas Southwestern
Watch Video
Download Slides
June 12 | 4:00–4:20 pm EST
Panel Discussion led by TBA & Questions (round II)
Watch Video
Part III: Pathogenesis, virus, and immunity in AFM
June 12 | 1:10–1:20 pm EST
Introduction
Cristina Sadowsky & Carlos Pardo, Kennedy Krieger Institute and Johns Hopkins University School of Medicine
Watch Video
June 12 | 1:20–1:35 pm EST
Looking at pathogenesis in AFM: The virus and the immune system
Richard Scheuermann, J. Craig Venter Institute
Watch Video
Download Slides
June 12 | 1:35–1:50 pm EST
Looking at pathogenesis in AFM: the virus and the cells
William Jackson, University of Maryland
Watch Video
Download Slides
June 12 | 1:50–2:05 pm EST
Enterovirus D68 and neurotropism
Amy Rosenfeld, Columbia University
Watch Video
Download Slides
June 12 | 2:05–2:20 pm EST
Animal models for studying AFM
Kenneth Tyler, University of Colorado
Watch Video
Download Slides
June 12 | 2:20–2:50 pm EST
Panel Discussion led by TBA & Questions (round I)
Watch Video
June 12 | 2:55–3:10 pm EST
Looking at the host genes in AFM
Priya Duggal, Johns Hopkins Bloomberg School of Public Health
Watch Video
Download Slides
June 12 | 3:10–3:30 pm EST
AFM, enteroviruses and vaccines
Cristina Cassetti, National Institute of Allergy and Infectious Diseases, NIH
Watch Video
Download Slides
June 12 | 3:30–3:50 pm EST
The future of diagnostic tools in AFM
Charles Chiu, University of California San Francisco
Watch Video
Download Slides
June 12 | 3:50–4:10 pm EST
A novel proposal: Antibody treatment for AFM
Matthew Vogt, Vanderbilt University
Watch Video
Download Slides
June 12 | 4:10–4:30 pm EST
AFM: From the clinic to the bench and back to the patient
Ann Yeh, The Hospital for Sick Children
Watch Video
Download Slides
June 12 | 4:30–5:00 pm EST
Panel Discussion led by TBA & Questions (round II)
Watch Video
Part IV: Management of long-term consequences of AFM
June 26 | 1:10–1:20 pm EST
Introduction
Cristina Sadowsky & Carlos Pardo, Kennedy Krieger Institute and Johns Hopkins University School of Medicine
Watch Video
June 26 | 1:20–1:35 pm EST
A Patient perspective
Sarah Todd Hammer, Author, Dancer, Activist
Watch Video
Download Slides
June 26 | 1:35–1:50 pm EST
Symptom Management in AFM
Joyce Oleszek, Children’s Hospital Colorado
Watch Video
Download Slides
June 26 | 1:50–2:05 pm EST
Respiratory health in AFM
Michelle Melicosta & Kofi Anoh, Kennedy Krieger Institute
Watch Video
Download Slides
June 26 | 2:05–2:20 pm EST
Activity Based therapy in chronic AFM
Courtney Porter, Kennedy Krieger Institute
Watch Video
Download Slides
June 26 | 2:05–2:20 pm EST
Managing low bone mineral density in AFM
Mahim Jain & Cristina Sadowsky, Kennedy Krieger Institute
Watch Video
Download Slides
June 26 | 2:20–2:50 pm EST
Panel Discussion led by TBA & Questions (round I)
Watch Video
June 26 | 2:55–3:10 pm EST
CDC AFM Program Updates: Preparedness and Partnerships
Sarah Kidd & Alexandra Hess, Center for Disease Control and Prevention
Watch Video
Download Slides
June 26 | 3:10–3:30 pm EST
Habilitation: obtaining ongoing services
Janet Dean, Kennedy Krieger Institute
Watch Video
Download Slides
June 26 | 3:30–3:50 pm EST
Promoting Advocacy for AFM
Rebecca Whitney & GG deFiebre, The Siegel Rare Neuroimmune Association (SRNA)
Watch Video
Download Slides
June 26 | 3:50–4:10 pm EST
Coping and adjustment: Keeping kids motivated
Margaret Tunney, Kennedy Krieger Institute
Watch Video
Download Slides
June 26 | 4:10–4:30 pm EST
Advocating for your child in the school system
Lana Harder, UT Southwestern
Watch Video
Download Slides
June 26 | 4:30–5:00 pm EST
Panel Discussion led by TBA & Questions (round II)
Watch Video
Part V: Orthopedic and Surgical Treatments in AFM
July 10 | 1:10–1:20 pm EST
Introduction
Cristina Sadowsky & Carlos Pardo, Kennedy Krieger Institute and Johns Hopkins University School of Medicine
Watch Video
July 10 | 1:20–1:35 pm EST
The unmet needs in treatment and recovery of AFM patients
Riley Bove, University of California San Francisco
Watch Video
July 10 | 1:35–1:50 pm EST
Late tendon transfers in the upper extremity
Andrea Bauer, Boston Children’s Hospital
Watch Video
July 10 | 1:50–2:05 pm EST
Management of the neck, shoulders and spine in AFM
Paul Sponseller, Johns Hopkins School of Medicine
Watch Video
July 10 | 2:05–2:20 pm EST
Management of joint contracture, hip subluxation and limb length inequality in AFM
Colyn Watkins, Boston Children’s Hospital
Watch Video
July 10 | 2:20–2:50 pm EST
Panel Discussion led by TBA & Questions (round I)
Watch Video
July 10 | 2:55–3:10 pm EST
Surgical options for recovery: Nerve transfers in upper and lower extremities
Allan Belzberg, Johns Hopkins School of Medicine
Watch Video
July 10 | 3:10–3:30 pm EST
Surgical options for recovery of lower extremities
Amy Moore, Ohio State University School of Medicine
Watch Video
July 10 | 3:30–3:50 pm EST
Surgical options for recovery of diaphragm function: Nerve transfers and diaphragm/phrenic pacing
Dan Zlotolow, Shriners Hospitals for Children
Watch Video
July 10 | 3:50–4:10 pm EST
Panel Discussion led by TBA & Questions (round II)
Watch Video
July 10 | 4:10–4:30 pm EST
Parents and Family Panel Discussion
July 10 | 4:30–5:00 pm EST
Wrap Up
Cristina Sadowsky & Carlos Pardo, Kennedy Krieger Institute and Johns Hopkins University School of Medicine
Watch Video
Resource Center
| Talk | Speaker | Institution | |||
| Introduction | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 1:10–1:20 pm | EST | Watch Video |
| Keynote lecture: AFM, the disease | Kevin Messacar | Children’s Hospital Colorado | 1:20–1:40 pm | EST | Watch Video
Download Slides |
| A Parent Perspective | Rachel Scott | AFM Association | 1:40–1:55 pm | EST | Watch Video
Download Slides |
| What is known about the epidemiology of AFM | Janell Routh | Centers for Disease Control and Prevention (CDC) | 1:55–2:10 pm | EST | Watch Video
Download Slides |
| What is known about the viruses involved in AFM | Charles Chiu | University of California San Francisco (UCSF) | 2:10–2:25 pm | EST | Watch Video
Download Slides |
| The impact of COVID-19 pandemic on enterovirus circulation and AFM | Bryan Grenfell and Daniel Park | Princeton University | 2:25–2:40 pm | EST | Watch Video
|
| Panel Discussion led by TBA & Questions | 2:400-3:00 pm | EST | Watch Video
| ||
| The pediatric patient with acute weakness. When to think about AFM | Elizabeth Wells | Children’s National | 3:00–3:15 pm | EST | Watch Video
Download Slides |
| How to diagnose AFM and what to do in the Emergency Department | Sarah Hopkins | Children Hospital of Philadelphia | 3:15–3:30 pm | EST | Watch Video
Download Slides |
| Neuroimaging as a tool in the diagnosis of AFM | Olwen Murphy | Johns Hopkins School of Medicine | 3:30–3:45 pm | EST | Watch Video
Download Slides |
| AFM as an infectious disorder | Roberta DeBiasi | Children’s National | 3:45–4:00 pm | EST | Watch Video
Download Slides |
| Miss-diagnosis in AFM | Leslie Benson | Boston Children’s Hospital | 4:00–4:15 pm | EST | Watch Video
|
| NIH Natural History Study of AFM | David Kimberlin | University Alabama Birmingham | 4:15–4:30 pm | EST | Watch Video
Download Slides |
| Panel Discussion led by TBA & Questions | 4:30-4:50 pm | EST | Watch Video
|
Sponsors & Supporters
| Talk | Speaker | Institution | |||
| Introduction | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 1:10–1:20 pm | EST | Watch Video |
| The management of AFM in the ICU | Jessica Carpenter | Children's National Hospital | 1:20–1:40 pm | EST | Watch Video Download Slides |
| Respiratory issues in the acute phase of AFM | Becky Riggs | Johns Hopkins Children’s Center | 1:40–2:00 pm | EST | Watch Video Download Slides |
| What we know about treatment in AFM | Leslie Benson | Boston Children's Hospital | 2:00–2:20 pm | EST | Watch Video Download Slides |
| Panel Discussion led by TBA & Questions (round I) | 2:20–2:40 pm | EST | Watch Video | ||
| Rehabilitation during the acute phase of AFM | Cristina Sadowsky | Kennedy Krieger Institute | 2:40–3:00 pm | EST | Watch Video Download Slides |
| Early mobility in the ICU | Amy Bayliss & Meghan Moore | Johns Hopkins Children’s Center | 3:00-3:20 pm | EST | Download Slides |
| The neurophysiology of AFM | Matthew Elrick | Johns Hopkins School of Medicine | 3:20–3:40 pm | EST | Watch Video Download Slides |
| AFM: Putting pieces together from admission to discharge | Benjamin Greenberg | University of Texas Southwestern | 3:40–4:00 pm | EST | Watch Video Download Slides |
| Panel Discussion led by TBA & Questions (round II) | 4:00–4:20 pm | EST | Watch Video |
| Talk | Speaker | Institution | |||
| Introduction | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 1:10–1:20 pm | EST | Watch Video |
| Looking at pathogenesis in AFM: The virus and the immune system | Richard Scheuermann | J. Craig Venter Institute | 1:20–1:35 pm | EST | Watch Video Download Slides |
| Looking at pathogenesis in AFM: the virus and the cells | William Jackson | University of Maryland | 1:35–1:50 pm | EST | Watch Video Download Slides |
| Enterovirus D68 and neurotropism | Amy Rosenfeld | Columbia University | 1:50–2:05 pm | EST | Watch Video Download Slides |
| Animal models for studying AFM | Kenneth Tyler | University of Colorado | 2:05–2:20 pm | EST | Watch Video Download Slides |
| Panel Discussion led by TBA & Questions (round I) | 2:20–2:50 pm | EST | Watch Video | ||
| Looking at the host genes in AFM | Priya Duggal | Johns Hopkins Bloomberg School of Public Health | 2:55–3:10 pm | EST | Watch Video Download Slides |
| AFM, enteroviruses and vaccines | Cristina Cassetti | National Institute of Allergy and Infectious Diseases, NIH | 3:10-3:30 pm | EST | Watch Video Download Slides |
| The future of diagnostic tools in AFM | Charles Chiu | University of California San Francisco | 3:30–3:50 pm | EST | Watch Video Download Slides |
| A novel proposal: Antibody treatment for AFM | Matthew Vogt | Vanderbilt University | 3:50–4:10 pm | EST | Watch Video Download Slides |
| AFM: From the clinic to the bench and back to the patient | Ann Yeh | The Hospital for Sick Children | 4:10–4:30 pm | EST | Watch Video Download Slides |
| Panel Discussion led by TBA & Questions (round II) | 4:30–5:00 pm | EST | Watch Video |
| Talk | Speaker | Institution | |||
| Introduction | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 1:10–1:20 pm | EST | Watch Video |
| A Patient perspective | Sarah Todd Hammer | Author, Dancer, Activist | 1:20–1:35 pm | EST | Watch Video Download Slides |
| Symptom Management in AFM | Joyce Oleszek | Children’s Hospital Colorado | 1:35–1:50 pm | EST | Watch Video Download Slides |
| Respiratory health in AFM | Michelle Melicosta & Kofi Anoh | Kennedy Krieger Institute | 1:50–2:05 pm | EST | Watch Video Download Slides |
| Activity Based therapy in chronic AFM | Courtney Porter | Kennedy Krieger Institute | 2:05–2:20 pm | EST | Watch Video Download Slides |
| Managing low bone mineral density in AFM | Mahim Jain & Cristina Sadowsky | Kennedy Krieger Institute | 2:55–3:10 pm | EST | Watch Video Download Slides |
| Panel Discussion led by TBA & Questions (round I) | 2:20–2:50 pm | EST | Watch Video | ||
| CDC AFM Program Updates: Preparedness and Partnerships | Sarah Kidd & Alexandra Hess | Centers for Disease Control and Prevention | 3:10-3:30 pm | EST | Watch Video Download Slides |
| Habilitation: obtaining ongoing services | Janet Dean | Kennedy Krieger Institute | 3:30–3:50 pm | EST | Watch Video Download Slides |
| Promoting Advocacy for AFM | Rebecca Whitney & GG deFiebre | The Siegel Rare Neuroimmune Association (SRNA) | 3:50–4:10 pm | EST | Watch Video Download Slides |
| Coping and adjustment: Keeping kids motivated | Margaret Tunney | Kennedy Krieger Institute | 4:10–4:30 pm | EST | Watch Video Download Slides |
| Advocating for your child in the school system | Lana Harder | UT Southwestern | Watch Video Download Slides | ||
| Panel Discussion led by TBA & Questions (round II) | 4:30–5:00 pm | EST | Watch Video |
| Talk | Speaker | Institution | |||
| Introduction | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 1:10–1:20 pm | EST | Watch Video |
| The unmet needs in treatment and recovery of AFM patients | Riley Bove | University of California San Francisco | 1:20–1:35 pm | EST | Watch Video |
| Late tendon transfers in the upper extremity | Andrea Bauer | Boston Children's Hospital | 1:35–1:50 pm | EST | Watch Video |
| Management of the neck, shoulders and spine in AFM | Paul Sponseller | Johns Hopkins School of Medicine | 1:50–2:05 pm | EST | Watch Video |
| Management of joint contracture, hip subluxation and limb length inequality in AFM | Colyn Watkins | Boston Children's Hospital | 2:05–2:20 pm | EST | Watch Video |
| Panel Discussion led by TBA & Questions (round I) | 2:20–2:50 pm | EST | Watch Video | ||
| Surgical options for recovery: Nerve transfers in upper and lower extremities | Allan Belzberg | Johns Hopkins School of Medicine | 2:55–3:10 pm | EST | Watch Video |
| Surgical options for recovery of lower extremities | Amy Moore | Ohio State University School of Medicine | 3:10-3:30 pm | EST | Watch Video |
| Surgical options for recovery of diaphragm function: Nerve transfers and diaphragm/phrenic pacing | Dan Zlotolow | Shriners Hospitals for Children | 3:30–3:50 pm | EST | Watch Video |
| Panel Discussion led by TBA & Questions (round II) | 4:30–5:00 pm | EST | Watch Video | ||
| Parents and Family Panel Discussion | The Siegel Rare Neuroimmune Association (SRNA) | 3:50–4:10 pm | EST | Watch Video | |
| Wrap Up | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 4:10–4:30 pm | EST | Watch Video |
Resource Center
| Talk | Speaker | Institution | |||
| Introduction | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 1:10–1:20 pm | EST | Watch Video |
| Keynote lecture: AFM, the disease | Kevin Messacar | Children’s Hospital Colorado | 1:20–1:40 pm | EST | Watch Video Download Slides |
| A Parent Perspective | Rachel Scott | AFM Association | 1:40–1:55 pm | EST | Watch Video Download Slides |
| What is known about the epidemiology of AFM | Janell Routh | Centers for Disease Control and Prevention (CDC) | 1:55–2:10 pm | EST | Watch Video Download Slides |
| What is known about the viruses involved in AFM | Charles Chiu | University of California San Francisco (UCSF) | 2:10–2:25 pm | EST | Watch Video Download Slides |
| The impact of COVID-19 pandemic on enterovirus circulation and AFM | Bryan Grenfell and Daniel Park | Princeton University | 2:25–2:40 pm | EST | Watch Video |
| Panel Discussion led by Dr. Carlos Pardo & Questions (Round I) | 2:40-3:00 pm | EST | Watch Video | ||
| The pediatric patient with acute weakness. When to think about AFM | Elizabeth Wells | Children’s National | 3:00–3:15 pm | EST | Watch Video Download Slides |
| How to diagnose AFM and what to do in the Emergency Department | Sarah Hopkins | Children’s Hospital of Philadelphia | 3:15–3:30 pm | EST | Watch Video Download Slides |
| Neuroimaging as a tool in the diagnosis of AFM | Olwen Murphy | Johns Hopkins School of Medicine | 3:30–3:45 pm | EST | Watch Video Download Slides |
| AFM as an infectious disorder | Roberta DeBiasi | Children’s National | 3:45–4:00 pm | EST | Watch Video Download Slides |
| Misdiagnosis in AFM | Leslie Benson | Boston Children’s Hospital | 4:00–4:15 pm | EST | Watch Video |
| NIH Natural History Study of AFM | David Kimberlin | University Alabama Birmingham | 4:15–4:30 pm | EST | Watch Video Download Slides |
| Panel Discussion led by Dr. Carlos Pardo & Questions (Round II) | 4:30-4:50 pm | EST | Watch Video |
| Talk | Speaker | Institution | |||
| Introduction | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 1:10–1:20 pm | EST | Watch Video |
| The management of AFM in the ICU | Jessica Carpenter | Children’s National Hospital | 1:20–1:40 pm | EST | Watch Video Download Slides |
| Respiratory issues in the acute phase of AFM | Becky Riggs | Johns Hopkins Children’s Center | 1:40–2:00 pm | EST | Watch Video Download Slides |
| What we know about treatment in AFM | Leslie Benson | Boston Children’s Hospital | 2:00–2:20 pm | EST | Watch Video Download Slides |
| Panel Discussion led by TBA & Questions (round I) | 2:20–2:40 pm | EST | Watch Video | ||
| Rehabilitation during the acute phase of AFM | Cristina Sadowsky | Kennedy Krieger Institute | 2:40–3:00 pm | EST | Watch Video Download Slides |
| Early mobility in the ICU | Amy Bayliss & Meghan Moore | Johns Hopkins Children’s Center | 3:00-3:20 pm | EST | Download Slides |
| The neurophysiology of AFM | Matthew Elrick | Johns Hopkins School of Medicine | 3:20–3:40 pm | EST | Watch Video Download Slides |
| AFM: Putting pieces together from admission to discharge | Benjamin Greenberg | University of Texas Southwestern | 3:40–4:00 pm | EST | Watch Video Download Slides |
| Panel Discussion led by TBA & Questions (round II) | 4:00–4:20 pm | EST | Watch Video |
| Talk | Speaker | Institution | |||
| Introduction | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 1:10–1:20 pm | EST | Watch Video |
| Looking at pathogenesis in AFM: The virus and the immune system | Richard Scheuermann | J. Craig Venter Institute | 1:20–1:35 pm | EST | Watch Video Download Slides |
| Looking at pathogenesis in AFM: the virus and the cells | William Jackson | University of Maryland | 1:35–1:50 pm | EST | Watch Video Download Slides |
| Enterovirus D68 and neurotropism | Amy Rosenfeld | Columbia University | 1:50–2:05 pm | EST | Watch Video Download Slides |
| Animal models for studying AFM | Kenneth Tyler | University of Colorado | 2:05–2:20 pm | EST | Watch Video Download Slides |
| Panel Discussion led by TBA & Questions (round I) | 2:20–2:50 pm | EST | Watch Video | ||
| Looking at the host genes in AFM | Priya Duggal | Johns Hopkins Bloomberg School of Public Health | 2:55–3:10 pm | EST | Watch Video Download Slides |
| AFM, enteroviruses and vaccines | Cristina Cassetti | National Institute of Allergy and Infectious Diseases, NIH | 3:10-3:30 pm | EST | Watch Video Download Slides |
| The future of diagnostic tools in AFM | Charles Chiu | University of California San Francisco | 3:30–3:50 pm | EST | Watch Video Download Slides |
| A novel proposal: Antibody treatment for AFM | Matthew Vogt | Vanderbilt University | 3:50–4:10 pm | EST | Watch Video Download Slides |
| AFM: From the clinic to the bench and back to the patient | Ann Yeh | The Hospital for Sick Children | 4:10–4:30 pm | EST | Watch Video Download Slides |
| Panel Discussion led by TBA & Questions (round II) | 4:30–5:00 pm | EST | Watch Video |
| Talk | Speaker | Institution | |||
| Introduction | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 1:10–1:20 pm | EST | Watch Video |
| A Patient perspective | Sarah Todd Hammer | Author, Dancer, Activist | 1:20–1:35 pm | EST | Watch Video Download Slides |
| Symptom Management in AFM | Joyce Oleszek | Children’s Hospital Colorado | 1:35–1:50 pm | EST | Watch Video Download Slides |
| Respiratory health in AFM | Michelle Melicosta & Kofi Anoh | Kennedy Krieger Institute | 1:50–2:05 pm | EST | Watch Video Download Slides |
| Activity Based therapy in chronic AFM | Courtney Porter | Kennedy Krieger Institute | 2:05–2:20 pm | EST | Watch Video Download Slides |
| Managing low bone mineral density in AFM | Mahim Jain & Cristina Sadowsky | Kennedy Krieger Institute | 2:55–3:10 pm | EST | Watch Video Download Slides |
| Panel Discussion led by TBA & Questions (round I) | 2:20–2:50 pm | EST | Watch Video | ||
| CDC AFM Program Updates: Preparedness and Partnerships | Sarah Kidd & Alexandra Hess | Centers for Disease Control and Prevention | 3:10-3:30 pm | EST | Watch Video Download Slides |
| Habilitation: obtaining ongoing services | Janet Dean | Kennedy Krieger Institute | 3:30–3:50 pm | EST | Watch Video Download Slides |
| Promoting Advocacy for AFM | Rebecca Whitney & GG deFiebre | The Siegel Rare Neuroimmune Association (SRNA) | 3:50–4:10 pm | EST | Watch Video Download Slides |
| Coping and adjustment: Keeping kids motivated | Margaret Tunney | Kennedy Krieger Institute | 4:10–4:30 pm | EST | Watch Video Download Slides |
| Advocating for your child in the school system | Lana Harder | UT Southwestern | Watch Video Download Slides | ||
| Panel Discussion led by TBA & Questions (round II) | 4:30–5:00 pm | EST | Watch Video |
| Talk | Speaker | Institution | |||
| Introduction | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 1:10–1:20 pm | EST | Watch Video |
| The unmet needs in treatment and recovery of AFM patients | Riley Bove | University of California San Francisco | 1:20–1:35 pm | EST | Watch Video |
| Late tendon transfers in the upper extremity | Andrea Bauer | Boston Children’s Hospital | 1:35–1:50 pm | EST | Watch Video |
| Management of the neck, shoulders and spine in AFM | Paul Sponseller | Johns Hopkins School of Medicine | 1:50–2:05 pm | EST | Watch Video |
| Management of joint contracture, hip subluxation and limb length inequality in AFM | Colyn Watkins | Boston Children’s Hospital | 2:05–2:20 pm | EST | Watch Video |
| Panel Discussion led by TBA & Questions (round I) | 2:20–2:50 pm | EST | Watch Video | ||
| Surgical options for recovery: Nerve transfers in upper and lower extremities | Allan Belzberg | Johns Hopkins School of Medicine | 2:55–3:10 pm | EST | Watch Video |
| Surgical options for recovery of lower extremities | Amy Moore | Ohio State University School of Medicine | 3:10-3:30 pm | EST | Watch Video |
| Surgical options for recovery of diaphragm function: Nerve transfers and diaphragm/phrenic pacing | Dan Zlotolow | Shriners Hospitals for Children | 3:30–3:50 pm | EST | Watch Video |
| Panel Discussion led by TBA & Questions (round II) | 4:30–5:00 pm | EST | Watch Video | ||
| Parents and Family Panel Discussion | The Siegel Rare Neuroimmune Association (SRNA) | 3:50–4:10 pm | EST | Watch Video | |
| Wrap Up | Cristina Sadowsky & Carlos Pardo | Kennedy Krieger Institute and Johns Hopkins University School of Medicine | 4:10–4:30 pm | EST | Watch Video |
Sponsors & Supporters
