Happy Holidays from SRNA!

Many of us are ready to put this challenging year behind us. Despite the uncertainty the COVID-19 pandemic has caused, we want to highlight the hope and resilience this year has shown us and the progress we have made. We successfully transitioned our programs to a virtual space, like our three-day 2021 Rare Neuroimmune Disorders Symposium, and our support group leaders have offered online support group meetings for participants around the world. We know so much more about COVID-19, its impact on our community, we now have safe and effective vaccines, and new treatments are being studied and approved. As we move into a new year, we at SRNA renew our commitment to connect you to education, resources, and timely support — especially during these demanding times.

Our work wouldn’t be possible without the generous support of our community members and donors. We are incredibly grateful to be part of such a caring family. Thank you. We could not have done this without you.

However you are celebrating this year, we wish you peaceful, happy, and safe Holidays. We look forward to a time when our community can meet in person again.

When the calendar turns to 2022, challenges will remain — but we will seize them as opportunities to continue improving and shaping a better world for all those affected by rare neuroimmune disorders. Together.

With love and gratitude,

— your SRNA family

This Holiday Season, give Hope


There are extra tax advantages available for charitable giving before year-end.

  • For those based in the United States, here’s how the CARES Act impacts charitable contributions made in 2021:
  • Taxpayers who don’t itemize deductions may take a charitable deduction of up to $300 ($600 for joint filers) for cash contributions made in 2021 to qualifying charitable organizations.
  • Limits on charitable deductions for itemized filers have been temporarily suspended for 2021 cash contributions.
    For more information about these changes, go to IRS.gov or contact your tax advisor.